Archive Page 194

Off The Record

Gwen and Dan Olsen were a handsome couple with a stunning blonde eight-year-old daughter, Trina. They had just moved to the town where I did my residency and over the course of their first six months there I saw all three of them for routine health care needs.

One day Gwen came in for nausea. She didn’t look well and I could see in her facial expression that something was dreadfully wrong. Thinking unplanned pregnancy and morning sickness, I glanced at her problem list, where her husband’s vasectomy was listed, in my own handwriting, as her method of contraception.

“I’m pregnant”, she burst out, tears suddenly streaming down her cheeks. I sat quietly for a while. She didn’t say anything.

“Dan had a …”, I started.

“He’s not the father”, Gwen said.

Wiping her tears she described how she had gone back to her parents for a visit, run into an old boyfriend and found herself doing the unthinkable.

“Does Dan know?” I asked.

She nodded.

“What do you want to do?” I didn’t say the A-word, but she understood.

“We’ve talked it over and we’re going through with the pregnancy as if it were Dan’s baby”, she began. “He’s promised me he will love us both just as much as if he were the father. We’ll just tell people the vasectomy must have failed.”

“Those things happen”, I said.

“Will you be my doctor for the pregnancy?” she asked.

“Of course”, I nodded.

“And please don’t put anything in my medical record about it not being Dan’s.”

“Of course”, I reassured her.

That fall I delivered a beautiful baby boy to two of the nicest, proudest parents I know. I was able to see him, his parents and his sister through two years of well baby visits, shots and minor childhood illnesses during the last two years of my residency.

Several years later I happened to run into the four Olsens again. Little Brad looked just like his mother.

Today I read in a journal that a large percentage of patients won’t tell their doctor sensitive information if they believe their information might be shared electronically with other doctors, hospitals or insurance companies.

Some things are better left off the record.

What Are We Doing?

Two encounters today made me pause and reflect about what we really are doing to our patients and to the health care system.

The first one was a pharmaceutical representative in the clinic hallway. He tried to engage me in a conversation about the latest medication for overactive bladder.

“How much does it cost?” I asked innocently.

“It’s covered by most insurance companies”, he replied.

“I don’t care, I’d like to know what it costs”, I insisted.

“I don’t know”, he said.

“Even medications that are covered by insurance have a cost to somebody. In the end we all pay for medications. I never prescribe anything without knowing roughly what it costs, because I have a responsibility to my patients and to the system to know that and keep it in mind when I choose a medication.” I surprised myself a little with the emphatic tone in my voice. After all, didn’t I leave Sweden twenty-nine years ago because of being fed up with socialized medicine?

“I’ll have that information next time”, he said meekly.

“Never mind, I’ll get it online”, I said. One minute later, as he was packing up his laptop and his handouts I saw him again as I passed down the hall on my way to the next patient.

“$139 a month”, I told him.

“Oh”, he said sheepishly.

The second encounter  was a new patient visit. Mrs. Schmidt had just moved here from downstate to be closer to her daughter. A stylish woman in her mid-seventies, she had a fairly straightforward history and medication list. The only unusual thing I noted was that she was taking a combined estrogen-progesterone pill at her age. 

“What is the reason for your hormone treatment?” I asked. “Did you have trouble with hot flashes?”

“No, my doctor thought it would be good for my heart and my cholesterol”, she answered.

“Well, that was the thinking, but we now know that hormone replacement therapy can increase a woman’s risk for breast cancer, and doesn’t protect women from heart disease. It actually seems to increase the risk of strokes and heart attacks”, I said, not sure how she would take my disagreeing with her previous doctor.

“Well, then I’m happy to stop it”, she said. “I’m only taking half of a tablet anyway. 

“Great, one less medicine”, I concluded. I made a mental note of the fact that her doctor had continued to refill this prescription for seven years, even after the Women’s Health Initiative study found that such hormone treatment did the opposite of what the medical establishment had believed.

Postmenopausal hormone treatment has been around for fifty years, and many people saw estrogen as a wonder drug that promised prolonged youth and vitality. It is very humbling that it took half a century, longer than the careers of most physicians, to find the truth.

I often wonder which of today’s wonder drugs will ultimately be proven not only useless but actually harmful. There are a few I worry about.

Problem List Problems

In Family Medicine it has been common to keep a “Problem List” in patients’ paper charts. Usually placed on the left hand side, on top of the Medication List, it has given doctors like me an instant thumbnail sketch before considering the specifics of each patient’s visit for that day.

A typical Problem List would include diagnoses like diabetes, hypertension, high cholesterol or rheumatoid arthritis. It would list prior surgeries, like gallbladder surgery, hysterectomy and appendectomy, and medication allergies. Many of us also would list important tests done, such as a patient’s last colonoscopy or cardiac catheterization and make note of their Family History.

Because Problem Lists are brief and the page usually has a fair amount of empty space, they can usually be digested in a quick glance, almost subconsciously and without effort.

In fifteen seconds or less I could prepare myself before seeing a colleague’s diabetic patient with abdominal pain, loss of appetite and loose bowels by checking that she had had her appendix out and a hysterectomy but never had agreed to a colonoscopy. I can also note that she is allergic to contrast dye and that her mother died from colon cancer at age 62.

The Problem List can usually be read as I walk down the hall to the exam room – that’s how quick it is to use. Because of its placement to the left in the chart, it can also be seen regardless of what page the chart is opened to on the right side.

My office notes tend to start with the presenting problem, and technically I don’t need to go into the items that are listed on the Problem List, as they are already so prominently displayed on the very first page of the patient’s chart. I may choose to do that anyway, after the presenting complaint. Incidentally, some insurance companies pay better if we spell out what we already registered semi-automatically by just glancing at the Problem List.

Occasionally I have worked with or taken over after Internal Medicine doctors. They do many things the way Family Practitioners do, but their use of Problem Lists is often different. Some of my internist colleagues leave the Problem List blank. Instead, they treat each patient visit as an independent event with no connection to the other pages in the medical record. They introduce the patient as if seen for the first time and begin every office note with an often lengthy summary, such as:

This 65-year old nonsmoking married white female with a past medical history of Type 2 Diabetes, contrast dye allergy, hysterectomy and appendectomy has a family history of colon cancer in her mother, who died at 62, yet the patient has previously declined screening. She presents today with…

As I look at Electronic Medical Records (EMR’s), which will be more or less required by law in this country in the next few years, I see a new type of Problem List, and it makes me sad. EMR’s tend to “populate” their Problem Lists automatically with every single diagnosis the physician makes. Important things like diabetes may drown among diagnoses of ordinary and self-limited things like influenza, colds, ankle sprains, ringworm and poison ivy – things that are unlikely to affect the future care of the patient. They would never be included in the original kind of Problem List unless a patient were to have those conditions often enough to be noteworthy.

One of the things I see happening in medicine today is that physicians are more and more documenting to serve the needs of others. Our own needs for speed and clinical efficiency are not driving the technology. Those who wish to count, evaluate and analyze what happens in the exam room seem to have more of their needs met by the technology we have available today.

Most electronic systems make it easy to document hoards of clinical data by just pointing and clicking, but they lack the ability to prioritize the data. Systems that don’t give clinicians the opportunity to distinguish between important and not-so-important data risk creating information overload and could cause the health care information system to clog up. Intelligent Problem Lists could help keep things in order.

A Negative Stress Test

Doris Delaney came from the next town. She had just turned sixty and she was worried. For two years she had suffered from chest pain after hard physical work and for the past month her attacks had been a little more frequent.

Her father had died from a heart attack at age 47. Her two brothers had bypass operations before age fifty. Her blood pressure was higher than ideal, even on medication. I flipped through the medical records that had come over on the fax machine and saw that her last LDL cholesterol, on medication, was too high for a high-risk patient.

“I looked on the Internet and I talked to my sister, who is a nurse in Houston. I think I’ve got angina and I’m worried I’ve got a blockage in one of my coronary arteries”, she said in her thick Texas accent.

I found a two-year-old stress test among the faxed pages and mumbled “I see you had a stress test a while back”.

“Yes, and the lady doctor who gave me the stress test told me to go home and take it really easy until I saw my Family Doctor, but he said the test came out okay”, she explained.

The first page of the stress test report was the interpretation of the Sestamibi®, or nuclear scan, where a radioactive tracer injected into the bloodstream shows how evenly the blood is distributed between various parts of the heart muscle at rest and with exercise. “Probably normal” was the conclusion rendered by the offsite cardiologist who interpreted the images. 

The second page was the report of what the physician saw when Doris did her treadmill exercise test. It said she had chest pain for several minutes at the end of the test and changes on her electro­cardiogram that were fairly typical for ischemia, decreased blood flow to the heart muscle.

“I know what happened”, I told her.

“A hundred years ago we would diagnose somebody with heart disease by listening to their story. Someone with your symptoms was said to have angina pectoris”, I explained.

“When I was in medical school we did EKG stress tests, and they were pretty good at identifying patients with partially blocked arteries. The EKG waveform changes when the heart muscle is stressed, because electricity travels differently through it.

The modern nuclear scan measures something a little different, not whether the muscle is feeling the lack of blood flow but how much blood we see in the picture going to each part of the heart. We think the nuclear test is more sensitive than the EKG, but I don’t know that it always is.

In your case you have symptoms that are very suspicious for having blocked arteries, and one part of your stress test was abnormal. Now you are having chest pain more often, and I want you to see a cardiologist as soon as possible. I think they will want to do a catheterization to look at your coronary arteries.

Today I need to give you a prescription for nitroglycerin, change your cholesterol medication and start you on one more blood pressure medication. These three things can make a difference right away.”

I had her wait in the room for a few minutes while I called the cardiology office at Cityside Hospital and spoke with Dr. Bronwen Wilkes about getting a fast-track consultation. It’s all set; her appointment is Monday.

“You Don’t Know Me!”

Maria had seen my partner for a few years before switching to me last year. I was struck by her unusual accent and her ability to figure things out. 

On our second visit she told me in broken English that she was sure her blood pressure medication was making her sick. She had even been to the emergency room once with severe swelling of her tongue.

Maria didn’t know the word for what she had – angioedema caused by the enalapril she had been taking for many years – but she knew she had to stop the medication.

It took us a few visits to find a suitable alternative. I was hopeful I had finally got it right.

As I entered her exam room for today’s follow-up she smiled at me and said hello. I asked how she was doing as I sat down across from her with her chart in my lap. Her eyes turned dark and her smile dissolved.

“You don’t know me”, she said sternly.

Taken aback at first, I checked her facial expression again; it was serious, but not angry.

“I only know what you have told me and what’s in here”, I said, pointing to her chart.

She scoffed: “Other doctors’ words about me.”

“I’ll tell you something about me. I had five children, many have problems. My son is in prison, one daughter is on drugs, another won’t let me see my grandchildren and my husband is long gone”, she blurted out as she leaned forward in her chair.

“My mother had nine children, me the oldest”, she continued. “I only got five years of school. My mother, she needed me to take care of the babies, then I worked in a shoe factory. I teach myself English watching TV.”

I sat quietly as she spoke.

“My father was a drunk and my husband too. They both beat me. I always worked hard and my life was always hard. I say that’s why I have high blood pressure.”

In the silence that followed, her eyes met mine and they brightened a little again. I put her chart aside unopened and placed the blood pressure cuff around her arm.


I just realized none of the posts show on an iPad or a computer, but they do show on an iPhone. WordPress is working on this. In the meantime, please visit my Substack.

 

 

Osler said “Listen to your patient, he is telling you the diagnosis”. Duvefelt says “Listen to your patient, he is telling you what kind of doctor he needs you to be”.

 

BOOKS BY HANS DUVEFELT, MD

CONDITIONS, Chapter 1: An Old, New Diagnosis

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