Archive Page 173

The Art of Listening: Narrative, Hermeneutics and the Electronic Medical Record

Doctors tend to speed read. We are often in a hurry to extract the salient points from the large amount of information we receive every day in the form of journal articles, discharge summaries, imaging and consultation reports – and we often bring the same trait to our verbal history taking in the office or at the bedside.

In the past, before Electronic Medical Records, people argued over how many seconds the average doctor listened before interrupting the patient, but the point was clear – we often prefer to receive information on our terms, when we want it and in the order we want it. In part this is because we often imagine that this is faster than letting the patient speak uninterrupted. In part it is because it helps our pattern recognition, which can be a useful way of making a diagnosis but it may also be a counterproductive way of pigeonholing our patients without trying to see the uniqueness of their condition.

Osler said, “Listen to your patient, he is telling you the diagnosis”. But there is more to listening than making a diagnosis. All communication requires listening. Physicians today are not asked to diagnose patients as often as Osler’s contemporaries were. Our patients come to us looking for relief from anxiety, insomnia, overweight or depression. They sometimes ask our help in obtaining disability benefits instead of diagnosis and treatment. Those situations are not at all like making a diagnosis of myxedema or an infectious disease. In those situations we need to understand what motivates our patients.

The concept of Narrative Medicine has been around for a dozen years. It is not only the patient with a psychological or psychiatric complaint who needs to tell the story that goes with the symptoms. Many patients cannot reduce their experience of any illness to clear-cut, easily catalogued clinical factoids.

In the days of dictated office notes, many of us put the patient’s chart somewhere within reach but then gave all our attention to the patient. We would use eye contact and body language to encourage continued communication and we would listen for the untold parts of the story that unfolded. Not until after the visit was over and the patient gone from the clinic would we reach for the microphone or digital recorder and create our office note, which would summarize both the clinical details and the narrative.

Today, with real-time documentation into medical records built around structured data entry, doctors who used to sit back and listen are leaning over keyboards and mouse pads. Instead of savoring and contemplating their patient’s unique words, doctors are now choosing between adjectives in drop-down menus, as in a reverse paint-by-numbers process.

With fewer nuances and less detail in the digital narrative, there is greater risk that we may never understand what a symptom or disease means to a patient: Hermeneutics, mostly thought of in the context of Bible interpretation or philosophy, is an emerging area of exploration in medicine, just when our electronic clinical notes are starting to look more and more similar from one patient to the next. At the same time the revolution of modern genetics is creating the potential for what some call Precision Medicine, referenced in a recent issue of The New England Journal of Medicine. This is the science that lets doctors know in advance which patient will respond to what treatment. It has even been suggested that one could pick antidepressant medications based on biochemical testing.

It is ironic that the medicine of the future promises to be exquisitely personalized in the biochemical sense, but more and more depersonalized from a humanistic, hermeneutic point of view:

Picking antidepressants based on genetics – instead of listening to the patient? Maybe if we listen more, we might prescribe less.

The Gift of Healing: Pastor Graf and Henri Nouwen

My last encounter with Pastor Graf was brief, a few words exchanged on a windy sidewalk. I, a young hospital intern, was on a quick lunch break errand downtown. He, an aging, slightly disheveled country minister, was in town to visit his 94-year old mother.

I have carried the image with me ever since then of the tall, heavy-set man with his unbuttoned overcoat flapping around him. I remember his dark, peaceful eyes and his full, carefully moving lips as he spoke. I can still hear his soft, yet penetrating voice. I had listened to him speak so many times – in his little village church on Sunday mornings and during midnight masses, driving along dirt roads at breakneck speeds in his Peugeot station wagon and over tea with scones in the vicarage.

I was his assistant for a couple of summers, an unpaid job that evolved from my position as junior leader at a co-ed Scout confirmation camp.

Pastor Graf needed an assistant and I didn’t mind a closer look at the life of a country preacher. My own confirmation classes had been anything but inspiring. I attended Saturday classes in my parish church with a bunch of boys, who did their best to sabotage the aloof, prim and occasionally ill-tempered minister. I never heard anyone in the neighborhood say they had been inspired or helped by Pastor Berglund.

Pastor Graf was anything but aloof. He spoke plainly with people from all walks of life. He knew about fishing and farming. He took a deep interest in everyone in his rural parish, and had a hand in most community events. He knew everybody by name. Day or night, he was always available to listen to anyone’s sorrows or worries. He was a healer of troubled souls.

He was a man with many interests, loved music, art and history. Technical things, from cars to stereo equipment, fascinated him. He was also an entrepreneur who brought in royalties for his church from sales of liturgical items he had created.

What I didn’t know when I signed up to work for him, but what made me respect him more and more during the years I knew him, was that in spite of his gifts and standing as a clergyman, he wasn’t on top of the world. He worried constantly about his elderly but healthy mother and he was tormented by religious doubts and feelings of inadequacy in doing God’s work. And although I never saw him drink alcohol any other time, he always poured a very full goblet for communion and savored what was left when the service was over.

Later I would hear of him, not by name, but I knew he was the one people at the hospital talked about; local minister in the Emergency Room with a manic episode, respected pastor dropped off by police to avert OUI charge. My understanding of the man beneath the white collar deepened, and my admiration for him grew even more as I learned about his challenges and heard others speak of him disparagingly.

I understood then, more than when I was with him, that through his own angst and his own doubts he found the common ground to connect with the people in his community. I also understood that his God, the one he asked to strengthen his faith, had chosen him as His vehicle because of all his weaknesses, not in spite of them.

I didn’t have the words for it then, but years later I heard of Henri Nouwen’s book “The Wounded Healer”, which was written during the time I worked with Pastor Graf. It was one of those titles that can instantly change how you see the world before you even open the book. I actually didn’t read it until recently. Nouwen doesn’t say that a minister needs to have deeper wounds than his parishioners or that he needs to expose his own suffering in order to be effective. He does say that it is through his own wounds that he can relate to the suffering of humanity all around him.

People have taken Nouwen’s concepts into the arena of medicine as well, although he didn’t specifically include physicians in his thesis. I believe there is no difference between spiritual and physical healing; all healers must know suffering personally in order to be effective. It doesn’t mean the physician’s suffering needs to be the same as the patient’s, nor does it mean that the physician, any more than the minister, needs to show his wounds publicly.

It does mean that those among us, ministers and physicians, who are unaware of or deny their wounds and weaknesses, cannot fully use the great gift of healing that isn’t their own but only passes through them. For that to happen they need both self-awareness and empathy.

“The Wounded Healer” made me think of Pastor Graf when I first heard the title. Now, many years later, I finally know for sure that the book is about people like him.

Jumping to Conclusions

Muffy Wahl slipped backwards on her icy porch and landed on her right hip. Bruised and sore, she took it easy for a few days but she still went to her exercise class the following Thursday. The petite sixty-three year old was determined not to let a silly little fall set her back, and she did her jumping jacks to the loud, fast music with more determination than usual. She could barely drive herself home afterwards.

After dinner Thursday night she didn’t know what to do with herself; she shifted her weight back and forth, but the pain was just as bad no matter how she positioned herself. Getting ready for bed she noticed the bruises were bigger and now reached around to her groin.

Even flat on her back she was in pain. It was a constant, relentless, nauseating pain unlike anything she had experienced before.

Friday morning she got a call from her twin sister, Mary, who had just been admitted to the hospital with a hip fracture. Muffy promised to go and see her, even though it meant a twenty-mile drive. She took some ibuprofen and drove off to see her sister.

After the two women had visited for a while, Mary noticed Muffy’s pained expression as she shifted her weight in her chair. Mary suggested that Muffy get herself checked out downstairs in the emergency room. Muffy hesitated, still thinking it was just a bad bruise. Besides, she had never had any dealings with St Bartholomew’s Hospital; she always went to Cityside.

Mary insisted, and soon Muffy was downstairs, wearing a hospital gown and being wheeled into x-ray.

“The x-rays were normal and they said it was just a bad bruise”, Muffy told me Monday afternoon in the office “Then they gave me a shot for pain that wouldn’t make me tired. I drove myself home later on.”

“And then…” I asked.

“I noticed the welts Saturday morning. I’ve been in agony all weekend.”

“Welts?”

“Yes, I thought it might have been an allergic reaction to the shot they gave me, but they were only around my right hip.”

“Let me see”, I said.

She exposed the skin around her right hip. There were bruises, red blotches, and the unmistakable blisters of Herpes Zoster – shingles.

“This is shingles. Did anyone look at your skin?” I asked.

“No, they checked how my hip moved and took the x-rays through the hospital gown”, she answered.

Today’s Masterpiece

“Make every day your masterpiece.”

             Coach John Wooden

“…to do the day’s work well and not to bother about tomorrow. You may say that is not a satisfactory ideal. It is; and there is not one which the student can carry with him into practice with greater effect. To it more than anything else I owe whatever success I have had — to this power of settling down to the day’s work and trying to do it well to the best of my ability, and letting the future take care of itself.” 

William Osler

 

Whether you are America’s most legendary basketball coach, the father of modern medicine or a busy primary care doctor in a remote rural area, there is only one right way to get through each day. In the practice of medicine with its daily ration of two dozen fellow human beings in some sort of need, we often only have one chance to get it right.

As a young man and newly trained physician, I spent a lot of time thinking about the future. I know I sometimes devoted less attention to the here and now than I should have.

Today I carry with me all kinds of memories of the past; some are useful clinical impressions and life experiences that help me be a better doctor, others are sentimental distractions I need to manage in order to be effective in the present moment.

I am also distracted by the future. The changes in health care we all face have me thinking about how things will be different tomorrow, what new skills I will need and which old ones will be obsolete. I also find myself spending too much time thinking about what’s wrong with health care today and imagining how things ought to be.

Most days we primary care physicians don’t diagnose any rare diseases, and we don’t usually know right away if our efforts will produce any lasting results. We know we are constantly being measured and evaluated by insurance companies, employers and many others – even the pharmaceutical companies track our prescription habits. We strive for quality certificates and worry about satisfaction surveys. We devote increasing time and energy to mastering the new technologies of health care delivery and documentation.

Today I spend more time e-prescribing a new medication for my patient with inoperable sciatica than I do choosing the drug and the dose in the first place. If I don’t specify capsules or tablets, or if I should neglect to put in “by oral route”, which I always thought was obvious with both capsules and tablets, the script won’t go through. I start thinking about what I would like to say to the IT people or how I would change the technology if somebody would just give me the opportunity.

Tonight over dinner Emma asked me one of those questions only she can ask me:

“In your work as a doctor, are you striving to meet your patients’ needs or your own?”

Before I had time to swallow and clear my throat, she continued:

“Because if you’re in it to fill your own needs, you’ll never be happy, since health care is not run by you or any other doctor anymore. If you focus on how things ought to be instead of doing the best for your patient in the reality of the moment, you’ll never be satisfied. If it’s not enough for you to know you did your best for that patient, then you’re in it for the wrong reasons.”

There are days when I clearly see that I made a difference in the life and welfare of a fellow human being because I saw what needed to be done and put my abilities to use. Those are the days I come home and tell Emma that I feel good about being a doctor.

Then there are those days when I talk about what kinds of things stood in my way of being a good doctor – excuses, really, when I think about them. My patients certainly aren’t interested in what my obstacles are. All they want from me is my best effort under the circumstances:

The lab closed early, the computer is malfunctioning, the specialist’s report is missing, the insurance doesn’t cover the medication and the road to the hospital is icy and snow-covered, but the patient is still sick. I am his doctor. Today’s work is today’s work. What more can I do besides make it my masterpiece for today? Isn’t that all I set out to do from the beginning?

“I’m Sorry Mrs. Jones, But You Have Albuminurophobia”

Last week I saw several older patients who were fretting about their mildly reduced kidney function. All of them were women in remarkable health, but each one had at one time or another had a brush with hospital medicine:

Mrs. Allard had a mastectomy five years ago, Mrs. Perlman had an episode of clostridium difficile colitis last year after taking antibiotics for a dental infection, and Mrs. Jones had just finished rehab after a knee replacement. All three women had been labeled as suffering from chronic kidney disease during their hospitalization.

Mrs. Allard was in on Monday. She never fails to ask what her Glomerular Filtration Rate is when she comes in for her visits. Every time I have to reassure her that her numbers are stable. She struggles to believe me when I tell her that her frequent urination is not a warning sign of impending kidney failure.

“GFR is chemistry, bladder spasms are a plumbing problem”, I tell her every time. “They are not related.”

“I don’t want to end up on dialysis and I have read that people with kidney disease are more likely to have heart attacks. My nephrologist tells me that, too. Mrs. Perlman said last Tuesday. Between her quarterly visits with Harold Wesson, the Chief of nephrology at Cityside Hospital, she worries enough to always mention her kidneys when she sees me for other things.

“But, Doctor, I have Stage III kidney disease!” Mrs. Jones said with obvious fear in her voice. It was Thursday afternoon and we really should have been talking about the dark mole on her right thigh.

“That doesn’t mean you’re in any real danger…” I began. She looked suspicious. “In fact, your kidney function two years ago was exactly the same.”

“Are you telling me I had kidney disease already then?” Her eyes widened.

“To the same degree, yes. Do you remember how I asked you to stop taking ibuprofen for your sore knee because it could harm your kidneys?”

“Yes, that’s when you gave me those prescription pain pills.”

“Precisely. I was concerned then that we needed to be kind to your kidneys – that’s pretty much all we do when people have what we call Stage III chronic kidney disease.”

“But you never told me I have kidney disease.”

“I didn’t use the word because I feel it alarms people more than it helps them. We talked about what helps the kidneys and what hurts them; we got you off the ibuprofen, we tightened up your blood pressure control with a new medication and we lowered your cholesterol. All those things help your kidneys work better and last longer.

“But Stage III – I mean, how many stages are there? How close to dialysis am I with Stage III disease?”

I was ready for her question. With all the patients like her I have seen, especially lately, I have put together some articles and teaching materials.

“I have been a doctor since 1979 and I can count on one hand the patients I have cared for that ended up on dialysis or dying from kidney failure. Look at this graph”, I said and pointed to the latest addition to my bulletin board. “You’re 74, and your GFR is 54. This graph shows that at your age, your GFR would have to be somewhere around 15 to make you more likely to die from kidney failure than something else.

She stared at the graph.

“So 54 is actually not a bad GFR?”

“Well, it’s not normal in terms of perfection, but it is very common. Even people who aren’t perfect can live a long and happy life.”

“So you’re saying I shouldn’t worry?”

“Not about your GFR specifically. Remember to be kind to your kidneys, like we have talked about.”

She nodded.

“Now, here’s the bad news”, I explained. “People with even mild kidney disease statistically are more likely to have heart attacks, strokes and other cardiovascular problems.”

She started to raise her eyebrows, and I hurried to continue:

“But, and this is important: I’m not smart enough to know what’s the chicken and what’s the egg. Do they have kidney disease because they have hardening of the arteries everywhere, or does the kidney disease itself cause it to happen?”

I continued:

“So we do the usual things – good diet, cholesterol, blood pressure. And we don’t just focus on the GFR.”

“I can’t help worrying about the numbers”, Mrs. Jones said.

“There’s a name for that”, I told her. “We call it albuminurophobia.”

“Really?”

“Really. There is a medical term for just about everything these days.”

She shook her head.

“Now, about this mole”, I continued…


I just realized none of the posts show on an iPad or a computer, but they do show on an iPhone. WordPress is working on this. In the meantime, please visit my Substack.

 

 

Osler said “Listen to your patient, he is telling you the diagnosis”. Duvefelt says “Listen to your patient, he is telling you what kind of doctor he needs you to be”.

 

BOOKS BY HANS DUVEFELT, MD

CONDITIONS, Chapter 1: An Old, New Diagnosis

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