Archive Page 213

A Doctor’s Advice

My friend, Dr. Barbara Brennan, who gave up her practice because of her CFS, or Chronic Fatigue Syndrome, told me a very touching story about her last conversation with her gynecologist.

Dr. Brennan worked hard, and seemed to be inexhaustible until her illness stopped her in her tracks. In this medically underserved area we all work hard, and many of us looked to her as someone to admire, because she didn’t seem to tire of what she did day after day.

Barbara Brennan told me that there was one colleague who had told her to take a hard look at what she was doing.

Samuel Baumgarten was Barbara’s gynecologist for many years. He had delivered two of her children and when she came in for her annual checkup he always took time to ask how she was doing as a physician. She confided in him that she wished she wasn’t working quite as hard.

Sam had stopped delivering babies a couple of years earlier as his patients grew older, and focused more on gynecologic surgery. He had also cut his workweek from four to three days a week. He told Barbara that five days a week was too much for any doctor.

In his mid sixties, Samuel Baumgarten was youthful and always seemed relaxed and in perfect health. He was an avid skier, tennis player and sailor. He never wore a tie. He followed the Red Sox and gave the impression that medicine was important to him but never kept him from being a human being also.

The last visit Barbara had with Sam he had urged her to think about changing her situation.

“You’re working too hard” he lectured her. “No one is indispensable, not even you or I.” He looked very serious, almost stern as he spoke to his younger colleague and patient.

“People may say that only you can help them, but after you’re gone, they’ll say ‘She was good, but who do I see now?‘”

She often heard those words echo in her mind on days when fatigue started to creep up on her. She did start to think about what she might want to – or need to – do in the next few years in order to avoid burnout.

Two months after that appointment Samuel Baumgarten died suddenly while skiing down his favorite slope.  Barbara heard one patient after another say what a good gynecologist Dr. Baumgarten had been and in the next breath ask whom they should see now.

Barbara herself had to do the same thing, choosing to see Sam’s younger partner Sandra, who was ten years his junior and a nice enough woman, but not a mentor the way Sam had been.

His words came back to her often during the first weeks of her illness as she struggled with her guilt over not showing up at the office. They helped her make her final decision to quit her practice. And she imagined her own patients, one by one, wrapping things up the same way:

She was a great doctor, but who do I see now?

The Doctor’s Doctor

Doctors have a reputation of making bad patients. Many of us even hesitate getting a personal physician. Years ago it was common for doctors to treat themselves and their families. The Latin vocabulary used on prescriptions includes the phrase “Ad Usum Proprium”, which means “For Personal Use”. This is now considered inappropriate, except in emergency situations or for occasional minor illnesses.

When I turned fifty, after years of neglecting my health, I decided to get my own Family Doctor. I thought about it for a long time. I decided not to see one of my partners, but someone in the city 20 miles from here. It should be a physician with more years of experience than I had, not someone who was young and “aggressive”.  In medicine we use that term for doctors who order lots of tests and prescribe multiple medications. My choice of Family Doctor for myself was Wilford Brown, III, MD, a tall, gray haired man with a solid reputation as a thoughtful, conservative clinician.

Our first meeting went well. I told him which things I was interested in looking into and which ones I didn’t worry about. He obliged, did a brief but appropriate physical exam and treated me with utmost respect. If he disagreed with me, he didn’t say so. I really liked him. We had another visit a year later, and I thought things were going well until he told me he was retiring. My heart sank. I asked him if there was another doctor in his office he would recommend for me. He didn’t hesitate before suggesting Dr. John Royson.

My first and only meeting with Dr. Royson did not go well. I sat in a bare exam room, fortunately not bare myself, for an hour. The exam room door was open and I overheard the medical assistant call Dr. Royson on the phone. Her end of the conversation went:

“Hello, Dr. Royson? Did you forget you had office patients today?”

“Yes, for over an hour.”

“So when will you be here?”

I had taken a half-day off, so I declined the assistant’s offer to reschedule the appointment. After another twenty minutes or so Dr. Royson appeared. He was in his early thirties, sported a flat top and didn’t apologize or even mention anything about me waiting almost an hour and a half.

D. Royson seemed a bit flustered about having an older physician for a patient. He mumbled to himself about perhaps checking my prostate etc. The whole visit lasted ten minutes.

I didn’t have to fire Dr. Royson; he left the practice to become a full time Hospitalist, doing what he was doing when he forgot that he had me and other patients to see at the office.

Dr. Royson’s replacement at Cityside Family Practice was another interesting experience. Dr. Joe Washburn looked like he’d rather be surfing, started me on a new blood pressure pill with a prescription good for a whole year and didn’t say a word about how to follow up. I got the impression he was so uncomfortable treating a colleague that he wished I’d go away and do my own follow-up.

Not long ago our clinic had a new patient register. We have a preliminary registration sheet come to the doctors for approval, because we are at near full capacity. This patient  registration sheet caught my eye:

Name: Wilford Brown, III, MD. 

Reason for choosing our practice: Payback.

Clara’s Sinus Headaches

When people come to my office with “sinus headaches”, they often ask for an antibiotic and perhaps something for congestion. Pain in the forehead, behind the eyes or in the cheekbone area doesn’t always mean infection, though.

Clara was a widow in her seventies, who had experienced frequent and severe sinus headaches for years. She even had postnasal drip and a recurrent sore throat. I ordered a CT scan, which was negative; there was no sign of cancer or polyps, but also no sign of sinusitis. On this, one of many office visits, she asked for antibiotics. I agreed to prescribe something while we waited to get the scan.

When we had a follow-up visit to review the scan, I told her the films were completely normal. She told me the antibiotics had cleared all her symptoms, just like every time her previous doctor had prescribed them. How could she not have had a sinus infection when the antibiotics always made her feel better? It wasn’t long before she came back with another request for antibiotics.

The antibiotics always had to be brand name – she insisted generics made her feel badly and they never cleared her sinuses. The pharmacists would call and point out that the generic version of her favorite antibiotic was actually made by the same manufacturer as the brand name. Clara was unconvinced. She had good insurance, and all she needed me to do was check the box on the prescription and write “Brand Medically Necessary”. This is what she insisted on for her antibiotics as well as for her maintenance heart medications.

I didn’t feel comfortable with Clara’s repeated requests for antibiotics, so I sent her for a couple more CT scans over the years, and she reluctantly agreed to see an allergist and an ear, nose and throat specialist. She didn’t like either of them, and they didn’t help her. She seemed to enjoy her visits with me, and she often said that she wouldn’t know what to do without me; on the way out she would hug me good-bye.

Clara often seemed a little sad and lost. Her husband had always taken good care of her, although I wasn’t sure how happy their marriage had been. She had never involved herself with practical or financial matters. Now she was struggling with what to do with their mobile home in Florida, and she fretted about whether to sell their house, which was too large and too expensive to heat. I would try to help her find the confidence to tackle things one at a time.

We finally had a heart-to-heart talk about her headaches. I suggested we stop treating her with antibiotics, and she asked me if I thought she was just imagining them. I reassured her that I didn’t think so, but explained that you can have temporary congestion without infection.

Clara sold her home and moved into a senior citizen complex. I was busy, and didn’t notice how much time had passed. One day recently my office nurse, Autumn, grinned and said “Guess who just made an appointment to switch all her prescriptions to generics!”

Clara entered the office with an air of confidence and dressed to the nines. “You look well”, I pointed out. “I’m happy,” she beamed, and pointed out a new diamond ring. 

Clara had not been in for well over six months. She never had headaches anymore, and she thought it was time she tried the generics. I knew her problem had never been her sinuses. And I knew it wasn’t all in her head; all along it had been in her heart.

Physician, Heal Thyself!

Dr. Barbara Brennan practiced Family Medicine in a nearby town for a decade. She was busier than most of her colleagues. Her patients adored her and she had earned a solid reputation as a crackerjack diagnostician. She worked long hours at the clinic and she ran a tight ship at home, managing a large household and even found time to be active in her community. She would be up at five to get everyone in her house on their way, and when she arrived at her office at eight, she always looked beautifully put together and on top of the world.

She never seemed hurried or harried. People wondered how she did it. Her husband, also a physician, admired his wife both as a woman and as a colleague. He had more years behind him as a doctor than she, but he often found himself asking for her medical opinion.

Dr. Brennan had many patients who appreciated her razor sharp diagnostic skills. She diagnosed a pheochromocytoma, a case of fallopian tube cancer, and several other rare medical conditions. She was also well known for her psychiatry skills. In rural America, primary care physicians deliver the majority of psychiatric care. Barbara Brennan moved comfortably between crisis intervention, brief psychotherapy, antidepressants, mood stabilizers and ADHD prescriptions.

There were two kinds of clinical problems she avoided. She didn’t enjoy doing the minor surgical procedures some primary care doctors see as bright spots in their day, and she didn’t enjoy treating fibromyalgia and Chronic Fatigue Syndrome. Suffering from some arthritis herself, she found it draining to work with patients she thought sometimes dwelled too much on their symptoms. It saddened her to see fibromyalgia patients focused on what they couldn’t do, instead of making the most of their physical abilities.

One Friday morning, at the end of an unusually busy week that even Dr. Barbara Brennan thought would never end, she noticed a strange tingling sensation over her right eye. As the day progressed, the tingling turned into a burning pain down most of the right side of her face. She became nauseous and developed a migraine. She had worked in spite of having migraines before and steeled herself to make it through the day. A slight dizziness set in, and she had trouble concentrating.

Finally home, she put dinner on the table, but didn’t eat anything herself. She looked in the mirror for a rash on her face. She asked her husband to double check closely for her. By eight o’clock she went to bed, exhausted and with a throbbing migraine.

Saturday morning her shingles rash was there, subtle at first. Her husband confirmed it and called the pharmacy with a prescription. Her headache was still there and she was still nauseous and lightheaded. She had to move slowly to avoid vertigo and she noticed it took her longer to find words, even to figure things out. As a physician, she knew she must have developed a touch of encephalitis – brain inflammation.

She expected to be out of work for a week, but complications set in. She broke out in hives from the antiviral medication and had to stop taking it after only three days of treatment. Without the medication the shingles flared up again and she became profoundly tired. Over the next few weeks she developed joint pains and muscle aches. She got a sore throat. She felt as if her mind and body moved in slow motion. All she accomplished was to get everybody off in the morning, and by the time she got the dishwasher loaded it was already almost noon. She didn’t take naps, she didn’t even sit down much – it literally took her so much longer to do the simplest things.

She cried in frustration: “What’s wrong with me?”

Her husband looked into her eyes, the right one still framed by the slight scars left by the shingles, embraced her and said what she knew but didn’t want to believe: “You have a post-viral syndrome, maybe early Chronic Fatigue Syndrome”.

Months have passed and Dr. Brennan has not returned to work. She is convinced that she has CFS. She didn’t like it in her patients and she is fighting to beat it in her own case. She now knows first hand how real and devastating this condition can be. She is learning to listen to her body, always doing as much as she can, pushing ahead just a little, so that eventually she can get her stamina and her health back. Sometimes when she pushes herself too hard the sore throat, body aches and tingling over her right eye remind her to slow down again. 

I asked Barbara the other day if she would ever resume her practice. Her answer was: “I can’t afford to ignore my own health. In that job, and at that pace, I did just that.”

Dr. Brennan is living by her own advice – Physician, Heal Thyself!

(Here’s to you, Barbara! With respect and best wishes…)

The Correct Diagnosis – Ten Years Later

Wanda has been my patient for over ten years. She has these spells that nobody could figure out. She had seen a couple of the doctors in our clinic and at least two neurologists. She was even admitted to a hospital a hundred miles away for EEGs and videotaping of her spells.

When I first met Wanda, she described spells of confusion accompanied by a slight headache, severe anxiety, nausea made worse by the smell of food and abdominal cramps. Her husband wouldn’t be able to talk with her, and she would have trouble remembering the entire episode after it was over.  The episodes often occurred during her period. The neurologists suspected seizures, but the video-EEG showed rather bizarre moaning and groaning with a normal EEG, so the conclusion was that she had pseudoseizures. This is a condition that basically falls under anxiety disorders.

None of the anxiety medicines did anything for Wanda and she insisted she wasn’t anxious. She is an accomplished businesswoman who travels, gives presentations and generally seems to be at ease with everything she does.

Wanda is not a complainer, so years went by without her bringing up her spells. She would come in for routine things and occasional minor illnesses, but she never spoke much about the spells.

Then one busy Friday she turned up as my 4:30 patient with the purpose of the visit stated as “spells”. Looking at my schedule that morning I had remembered how none of her doctors had been able to help her. I was tired and running late because of a couple of late-day emergencies, so it was about fifteen minutes of five when I knocked and entered her exam room. I was not in high hopes of solving her problem before 5 pm.

When you get stuck in a diagnostic dilemma you have two ways of approaching the problem. You can dig deeper and meticulously go over all the tests that have been done so far, looking for anything that could have been missed. You can also do the opposite, step back, clear your mind and listen to the patient’s story all over again. It is a little bit like those pictures in psychology class; the more you stare at them, the less likely you are to see the hidden image. Sometimes if you squint, you can see it right away.

Given the time available and also the amount of time that had passed since Wanda had anything done to figure out these spells, I chose the latter course. Instead of acting frustrated that I had an unsolvable problem at 4:45 on a Friday afternoon, I sat back, took a deep breath and asked Wanda to start from the beginning.

As I listened, I started to think that all of these symptoms sounded a little like migraines, except that the headaches were mild and sometimes absent. Some people have neurological symptoms with migraines. The nausea and abdominal pain, which she now described as bloating, sometimes followed by diarrhea, can be seen with migraines. There is a rare form of migraines called abdominal migraines or Cyclic Vomiting Syndrome, usually found in children. Her spells were getting a little less severe as she was approaching menopause, but they were interfering with her work, especially as she had to travel more in recent years. Migraines are more likely to occur when people aren’t following their normal routines – missed meals, lack of sleep and jet lag are all migraine triggers. There is also the phenomenon of “weekend migraines”.

I told Wanda that her story made me think of migraines. She lit up. It made sense to her and she was pleased that I was willing to go in a different direction. I gave her samples of Imitrex to be taken with attacks and a prescription for a common blood pressure medication that is often used for migraine prophylaxis. 

Within a month Wanda was almost free of the severe attacks, and she had stopped a couple of spells by taking the Imitrex. With her permission I sent copies of her records to a migraine specialist in Boston for his review. He confided in me that he had always been sceptical of abdominal migraines in adults, but agreed that I seemed to be on the right track. We are now adjusting her preventive medication because of side effects.

It took ten years to make the correct diagnosis – or, should I say, ten years and fifteen minutes. I can certainly not pat myself on the back for getting it right without feeling very humble about how we all missed what was going on for so long. Sometimes when you’re tired your mind can work more intuitively, and I think that is what happened here.


I just realized none of the posts show on an iPad or a computer, but they do show on an iPhone. WordPress is working on this. In the meantime, please visit my Substack.

 

 

Osler said “Listen to your patient, he is telling you the diagnosis”. Duvefelt says “Listen to your patient, he is telling you what kind of doctor he needs you to be”.

 

BOOKS BY HANS DUVEFELT, MD

CONDITIONS, Chapter 1: An Old, New Diagnosis

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