Archive Page 190

Meals on Wheels

Arthur Bloch has slowly been losing weight over the past six months. His thyroid function and all his routine labs are normal. He has had a chest x-ray, and he had a colonoscopy and an upper endoscopy a couple of years ago. He says his appetite isn’t what it used to be. He tells me he doesn’t have any trouble swallowing.

His Parkinson’s Disease is causing him to speak in a quiet, almost whispering voice, and his body movements and facial expressions are sparse. I have wondered if he might be depressed. He filled out a depression questionnaire a couple of months ago, and it was fairly unremarkable.

He and his wife, Zena, have had their share of health problems. Zena has become quite frail and has a mild dementia. Over the past few months, they have been set up with Meals on Wheels and homemaker services. Neither Arthur nor Zena drives anymore, and they are getting rides from the Senior Companion program. They usually come to each other’s appointment, in fact they seem inseparable and very devoted to each other.

Today, Arthur happened to be in alone. Zena was at the hairdresser’s. I reviewed his negative weight loss workup with him.

“I know why I am losing weight”, he declared. I looked quizzically at him. He continued:

“It’s the Meals on Wheels. Zena was always a wonderful cook and I ate like a king for fifty-two years, but with her dementia, she can’t cook anymore. She feels bad about it, but we have no other choice except Meals on Wheels. I don’t care for many of the meals, but I don’t want to say anything. That would just hurt her feelings. So I say I’m not hungry.”

“But you are hungry”, I concluded.

“Yes.” His eyes teared up.

“Can you get some desserts and instant breakfasts?”

“I suppose.”

The mystery of Arthur’s weight loss may be gone, but I am just as helpless with a diagnosis as I was without one.

“Treating to Target”

In medical school, as in any other educational endeavor, being good at test taking isn’t always the same as mastering one’s subject. Tests are easy to administer and their scores, particularly when multiple-choice questions are used, are indisputable and ideal for statistical analysis. Most people tend to agree that there is more to being a good doctor than scoring well on multiple-choice exams. Cultural competency, bedside manner, empathy and clinical problem solving often require other kinds of skills that don’t lend themselves as easily to numerical assessments.

As practicing physicians, we are constantly evaluated, and most of the time this involves the kinds of things that are easy to measure. Nobody is measuring how many years our patients with high cholesterol, hypertension, diabetes and obesity live before their first stroke or heart attack. Instead, we are often evaluated by how many of our patients reach treatment targets – certain levels of cholesterol, blood pressure, blood sugar and body mass index, as these numbers are thought to be approximations that indicate the same thing.

Human nature makes most people pay more attention to those things we are being scrutinized for. Numbers are easy to focus on. But there are problems when the numbers are viewed and pursued uncritically.

For example, two cholesterol medications lower LDL cholesterol to a similar degree, but one is proven to offer better heart attack protection than the other (Lipitor® versus Vytorin®). When physicians “treat to target”, they sometimes don’t help their patients get healthier at all, which was the topic of my very first blogpost.

The same applies to blood pressure medications; some of them prevent heart disease while some may actually increase the risk of cardiac disease and death.

A fundamental problem with treatment targets is how they are chosen. One example is the blood pressure target of 130/80 or less for diabetics. We have been held to this since 1992 as if it were handed down on the stone tablets along with the Ten Commandments. The UKPDS study in 1998 showed that lowering blood pressure for diabetics to a mean value of 144/82 reduced their cardiovascular risk. No study has actually proven that a blood pressure lower than 130/80 is ideal for diabetics with heart disease, and some have shown that pressures below 130/80 are linked not only to higher rates of serious medication side effects, but to an increased risk of death.

Yet I doubt the guidelines will change any time soon just because there are serious questions about their validity. Physicians who balance their professional judgment against the simplistic guidelines will continue to do so at their own peril.

An example of things that work, but cannot easily be measured, and therefore won’t be used to judge physicians’ performance is what diet our patients eat. Patients who eat olive oil have a 25% lower risk of heart disease than others, and patients aged 70-90 who follow a Mediterranean diet have a 50-60% lower risk of dying from heart disease and cancer than patients who eat a “regular” diet.

The Annals of Internal Medicine published an article from the Mayo Clinic last year, titled “Glycemic Control in Type 2 Diabetes: Time for an Evidence-Based About-Face?”. The authors summarize their viewpoints:

“Some diabetes guidelines set low glycemic control goals for patients with type 2 diabetes mellitus (such as a hemoglobin A1c level as low as 6.5% to 7.0%) to avoid or delay complications. Our review and critique of recent large randomized trials in patients with type 2 diabetes suggest that tight glycemic control burdens patients with complex treatment programs, hypoglycemia, weight gain, and costs and offers uncertain benefits in return. We believe clinicians should prioritize supporting well-being and healthy lifestyles, preventive care, and cardiovascular risk reduction in these patients. Glycemic control efforts should individualize hemoglobin A1c targets so that those targets and the actions necessary to achieve them reflect patients’ personal and clinical context and their informed values and preferences.”

The more pressure the pharmaceutical industry, insurance companies and healthcare administrators are under to prove the value patients get for their healthcare dollar, the more pressure we physicians will be under to adhere to numeric targets that others have chosen for us. And the more we concentrate on the numbers we are measured by, the greater the danger we won’t devote enough time and energy to doing the equally or more important things that nobody has figured out how to measure yet. We are at risk of acting like immature students, acing the multiple-choice questions but failing the hands-on clinicals. And this time our patients are not actors or volunteers, but sick people who come to us for help and advice in fighting their diseases.

“That Doctor Is A Nurse!”

Little Steven Pascal laughed out loud and pointed at my wife the first time he saw her. Initially, I didn’t understand why. She looked very respectable in her crisply ironed white lab coat, pink silk blouse, three-quarter length skirt and conservative black pumps; I thought she looked lovely.

“Look, Mommy”, he blurted out, “that doctor is a nurse”, to which his mother mumbled back something about both boys and girls becoming doctors.

Steven was more right than his mother, though; my wife isn’t a doctor, but a Nurse Practitioner. She no longer works in a medical office setting, but for ten years we worked side by side and she still enriches my professional life with her insights and advice.

I helped train my wife, who became a better clinician than I am. I also helped train one Nurse Practitioner who became Director of a Nurse Practitioner program at a nearby university and another NP who started her own practice for psychiatric patients with medical problems.

It is time I write about Nurse Practitioners. The subject came up briefly in my post “Time, Money and Midlevels”, which was also republished by KevinMD.

Nurse Practitioners have a Masters degree in Nursing, which generally is a six-year university education, and several years of clinical nursing experience.

Early on, Family Nurse Practitioners were a welcome addition to the primary care workforce in underserved communities when the new Medicare and Medicaid programs increased the number of eligible patients.

Over the years, Nurse Practitioners have found work in many other specialties, from dermatology to orthopedics, emergency medicine and inpatient care. Often, Family Nurse Practitioners were hired by specialist physicians and received on-the job specialty training. Even in states where NP’s can practice independently, Family Nurse Practitioners often choose to work as “physician extenders” in specialty areas under continued supervision by specialist physicians, who assume responsibility for the Nurse Practitioner’s work. This is basically how Physician Assistants work. In recent years there has been a backlash from the Nurse Practitioner credentialing bodies against this. They have insisted that NP’s stay within their scope of practice, based on their initial training, and not change specialties after graduation by working under the supervision of a physician in a different specialty.

The credentialing bodies for Nurse Practitioners offer Board Certification in nine different specialties. A Nurse Practitioner who wants to switch specialty would have to go back to school in order to qualify for board certification. While this strengthens the professional standing of Nurse Practitioners, it also limits their ability to take advantage of mentoring opportunities, change with the times and follow new trends in the job market. It may put seasoned NP’s at a disadvantage versus newly trained ones by not allowing them to be “grandfathered” into specialties they are already working within.

It has been said that physicians protect each other’s interests and tend to go easy on each other in licensing and credentialing matters. Many people I talk to say the opposite is true for nurses.

NP’s bring a nursing perspective to the practice of medicine. Patients who prefer a medical provider with a collaborative style, a focus on education and an interest in patient-centered medicine often seek them out. Not that all physicians are authoritarian, but that is a perception many patients have of us.

The quality of care delivered by NP’s in primary care has compared favorably to that of physicians. Critics say that is because NP’s tend to refer out their sickest patients. That is certainly true at every level of health care; there are always bigger clinics and more subspecialized specialists any one of us can refer our patients to. All clinicians need to do what Nurse Practitioners talk about – stay within their scope of practice.

Having worked with many Nurse Practitioners as well as osteopathic and allopathic physicians from dozens of countries, my belief is that education is only the minimum requirement to enter the healing professions. We are challenged to deliver our best in every patient encounter. The initials after our names don’t make our patients or their diseases more or less important. We are all healers.

A subspecialist at Cityside hospital once told one of my wife’s patients that she was in good hands with her choice of primary care provider:

“I trust her more than most of the doctors around here”.

That’s my wife, a Nurse Practitioner.

Continuity of Care

We often speak of the importance of continuity of care, but there is confusion about what this really means.

When I first joined our small clinic twenty-five years ago, continuity was the reason every medical group in the five town area had its own night-call roster. This way, patients who called after hours could reach a doctor from their own doctor’s office. Even if the covering physician didn’t know the patient, there was at least an illusion of familiarity. Continuity of care often motivated primary care doctors to do many procedures, which they nowadays may refer patients to specialists for.   Continuity of care was also the reason doctors traveled between their clinics and the hospital more than twenty miles away to care for hospitalized patients.

Over the years, some practices began sharing night call. Many primary care doctors stopped treating fractures and performing high-risk office procedures. The Hospitalist movement came to our area in the 1990’s. Many physicians stopped providing inpatient care, leaving this to specially trained, full time hospital doctors.

Many people lamented the loss of what they thought of as the old-fashioned country doctor, one who did everything and was always available. At the same time the level of sophistication in medicine made it harder for any single primary care doctor to deliver the same quality of care as a specialist in every area of medicine.

Family Medicine has struggled over the past twenty years to make peace with the new division of labor and what may look like a fragmentation of care. Family Physicians can and should be the glue that holds the fragments together. The latest name we use for this old concept is “Medical Home”.

Twenty-five years ago I had a chance encounter with another Family Physician in another community, much like my own newly adopted home town. I have seen his name now and then over the years, but we never met again after that day.

The other day I saw his name in JAMA, the Journal of the American Medical Association. He was the author of an inspiring essay about what real continuity of care is. He describes seeing a patient, who after a failed spine operation wanted to give up. Dr. David Loxterkamp knew the man from treating his aging mother and disease-stricken wife. He knew Bud had the resources to fight for his recovery, but he recognized that Bud was lost in what had happened to him. That knowledge, gained over years in the same community and through sharing in Bud’s family’s tragedies, helped Dr. Loxterkamp guide and motivate his patient to a full recovery.

Dr. Loxterkamp writes:

“Continuity of care is a pillar in the portico of primary care. But it promises more than customer satisfaction or improved health outcomes. When all we measure is the ratio of patient-physician continuity, we miss the point. The tragedy is not when others care for our patients, but when no one cares for them at all.”

“The purpose of continuity is to deepen our relationship with others, something that is utterly impossible if it never begins. It begins in every encounter where the patients feels known and – despite it – loved, or at least respected and cared for by another human being.”

“It cannot be enforced, taught or measured. It must be lived and experienced in the cross connections of real community. As physicians, we are chosen to witness the destruction wreaked by illness and age. Our challenge is to see the patient who has lost sight of himself. Thus, we are called to live where we serve, anchored against the currents of geographic mobility and “professional distance”. How else can we relocate those who have been dislodged from their identity?”

His words reflect my own experience and echo the words of Sir William Osler, the father of modern medicine, mentor to generations of physicians:

“Medicine is an art, not a trade, a calling, not a business, a calling in which your heart will be used equally as much as your head.”

“Recognize … the poetry of the commonplace, of the ordinary man, of the plain toil-worn woman with their loves and their joys, their sorrows and their griefs.”

“…gain the confidence of a patient and inspire him with hope.”

Continuity of care starts with caring.

A Bad Case of Congestion

Friday was unusually hazy, hot and humid for our northern location. My last patient before lunch was a “double book”. Nat Bruehl, an infrequent visitor to our clinic, had called about congestion and an irritated eye. Probably a case of conjunctivitis, everyone involved had concluded, and he was given an appointment within an already filled time slot for a “quick look”.

“I brought my daughter to her high-risk obstetrician’s appointment in Capital City Monday, and she made us drive with the blasted air conditioner on the whole way there and back. Ever since then my eyes seemed irritated”, Nat explained. “I figured I got a cold in them. I took some cold pills that didn’t do any good. Then, last night my right eye started to hurt like a son of a gun and now everything is a little blurry. I even had a hard time driving myself here in this rain storm.”

I looked at his face. His right eye was red, and as I looked closer, I noticed his pupil was enlarged. As I directed my wall mounted light at his eye, the pupil remained dilated and I could see that the fluid behind his cornea was gray and cloudy, barely letting the light through.

I brought him out in the hallway to look at the vision chart.

“Start with your good eye”, I asked him. Outside, lightning struck not far from the office. The earth shook and the fluorescent lights blinked.

He squinted and strained, and missed two letters on the 20/40 line. With his right eye, he couldn’t even do 20/100.

“You’ve got a true emergency”, I explained. “I think you’ve got a dangerous buildup of pressure in your eye because of an internal blockage – a case of acute glaucoma, and I want you to see an ophthalmologist today.

“But I couldn’t drive to the city”, Nat protested. “Not in this weather.”

“I wouldn’t want you to”, I warned him. “You need to find somebody else to drive you.” I also asked for his permission to bring in our head nurse and my own nurse, Autumn, to look at his eye. “I would like everyone here to see what you’ve got”, I explained.

He agreed, and I showed his abnormal eye to our nurses.

I made a call to the nearest ophthalmologist, Mike Dube, but he was off and had signed out to Jeremy Sweet over at Cityside Hospital. After hearing my case description, Dr. Sweet’s assistant gave Nate a 3 o’clock appointment.

“Now, don’t try to drive all the way there yourself”, I warned him. He agreed to find someone to drive him. I gave him directions and went back to my office to catch up on charts and grab a bite of my sandwich. Outside, the sky darkened as if night had already fallen.

The afternoon was a whirlwind. Other places may wind down on Friday afternoons, but not our clinic. Just before 5 o’clock there was a call from Dr. Sweet’s assistant.

“You were right”, she said. “He has a bad case of angle closure glaucoma and we are having a hard time getting his pressures down. It’s 50 even in his good eye. That antihistamine-decongestant he took for three days is probably what did it. Good thing you caught this – we often see people like this bounce around a bit before getting diagnosed.”

I thanked her and made sure to let the staff know about the callback. Flashes of lightning lit up the darkness outside, the thunder roared almost continuously, the floor vibrated and the rain beat hard against my office window as I finished my charts for the week.


I just realized none of the posts show on an iPad or a computer, but they do show on an iPhone. WordPress is working on this. In the meantime, please visit my Substack.

 

 

Osler said “Listen to your patient, he is telling you the diagnosis”. Duvefelt says “Listen to your patient, he is telling you what kind of doctor he needs you to be”.

 

BOOKS BY HANS DUVEFELT, MD

CONDITIONS, Chapter 1: An Old, New Diagnosis

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