Archive Page 167

What is Osteoporosis?

Sonya was no stranger to hard labor and the occasional back pain, but the pain that brought her to our clinic was like no other backache she had experienced before. It was sharp, focused in the middle of her upper back and it had appeared instantly as she leaned over to pick up her grandson, Ivan.
Her x-rays showed a compression fracture and her bloodwork was normal. Her bone density had been borderline about four years ago, so it seemed this probably was “just” an osteoporotic fracture and not a sign of anything more ominous. The MRI did not suggest cancer. Reassured, she took pain pills and limited her activities for the next several weeks, but the pain was unrelenting.
Sonya seemed to be a good candidate for a vertebroplasty, a procedure where a type of cement is injected into the collapsed vertebra. I referred her to Joe Dugan, an affable orthopedist with a special interest in vertebroplasties. Joe agreed and went on to schedule the procedure.
A week went by and Sonya didn’t hear anything. Then yesterday I got a message that I needed to speak with a physician reviewer about her procedure.
After several minutes of phone tree tribulations, it was clear that I would not be able to get anywhere with Consolidated Insurance, since I did not have access to Sonya’s policy number. All I had in my message was the case number, but the automated telephone attendant wouldn’t accept that number.
Finally I gave up and asked Autumn to get me a better number for the physician reviewer, which she did,  effortlessly.
The ensuing conversation made me nauseous. The jargon-swinging doctor at the other end of the line (actually, he faded in and out, and might have been on a cell phone) asked me if Sonya had osteoporosis.
“Well, she suffered a compression fracture picking up her grandson”, I answered.
“Has she had a bone density?” he asked.
“A couple of years ago”, I answered, “showing osteopenia”.
“Unless she has osteoporosis on a bone density test or cancer, her policy doesn’t cover vertebroplasty”, he said.
“But why else would she get the fracture, not skydiving or anything, but just picking up her grandson?” I asked, my head spinning. “Is a picture of her hip and lumbar spine really going to prove to you she doesn’t have osteoporosis in her upper back when she has had a spontaneous fracture?”
“I’m sorry, without a bone density to prove it, we cannot cover the procedure”, he said again.
The man was not acting or thinking like a doctor. There was no empathy, wisdom or compassion. I felt like I had watched a court room television drama, where the bad guy got off on a technicality.
Sonya’s insurance company is a large national for-profit conglomerate.
She will have a new bone density test, but the bigger question remains: What is osteoporosis? Bones that break easily or bones that appear thin in pictures? Are we treating patients or pictures of patients?

“Examine Thoroughly, Explain Simply”

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“Fear is more pain than is the pain it fears.”

Sir Philip Sidney

“In our specialist age it has, in fact, become a major function of the general physician to examine thoroughly, to explain simply, to reassure as far as may be, and to protect his patients from unnecessary medical or surgical interventions.”

John A Ryle, MD, 1948 in The Journal of Mental Science, published by The Royal Medico-Psychological Association

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Re-reading my post about Morbus Propedeuticus, Medical Students’ Disease, I realized I had inadvertently used the word “gracefully” in my account of how my instructor examined my enlarged lymph nodes and reassured me that they were not suspicious. My intention had been to say “graciously”. For a moment I thought I should correct my slip-up, but then I realized that what Dr Bruun did wasn’t just gracious, but actually quite graceful. His whole demeanor conveyed sincerity, kindness and patience. He made me feel completely reassured and relieved of my fears.

Every day, I encounter fear of some degree in patients, often unfounded; it is not the patients with cancer or heart disease or poorly controlled diabetes that share their fear behind my closed exam room door, but the patients with ill-defined symptoms or no symptoms at all.

I have a few patients who always seem to be concerned about one bodily sensation or another, but then there are some that have only one disease they are worried about getting. This predicament is different from hypochondriasis. It goes by the name nosophobia, literally “fear of disease”.

Nosophobia can be triggered by learning about a disease affecting someone we know, by reading or watching accounts of dreadful diseases, or by receiving inadequate information or reassurance when we do seek medical evaluation of a symptom.

In our “information age” patients often look up their symptoms on the Internet, and come across endless possible explanations, or differential diagnoses. The problem with random searches is that the results also tend to be randomly arranged and not ranked according to the person’s specific presentation or risk factors, and not at all according to how common or rare each disease is.

When we as physicians evaluate patients with undiagnosed symptoms or concerns over a specific disease, our thoroughness, thoughtfulness and demeanor can feed or quell nosophobia.

John A. Ryle, MD, in his Maudsley Lecture, quoted at the beginning of this post, writes about physicians inadvertently causing nosophobia in their patients:

“Again and again patients discharged from hospital, when asked what the doctors have told them, say, “ Oh, they didn’t tell me anything”. Often they have spent long periods in the ward and been elaborately investigated, all the time waiting and wondering and uninformed. Could anything be more conducive to the initiation or aggravation of anxiety than experience of this kind? Probably the divided responsibilities…..in institutions and the inexperience of house-officers are partly to blame, but the mechanistic, objective character of modern investigations also tends to distract the doctor’s from the patients’ thought and to direct attention away from private sensibilities and present needs. I have even watched air-raid victims being admitted, examined, X-rayed and transfused without a word of comfort or reassurance being given to them by those concerned.”

Ryle’s lecture was published in an obscure journal dedicated to what we now call Mind-Body Medicine. Today, even large mainstream institutions like Harvard Medical School have entire Mind-Body Medicine departments. But before thinking we have come a long way since 1948, we should remember that Mind-Body Medicine isn’t something separate from everyday primary medicine; it is possibly the biggest part of primary care. That doesn’t mean every primary care physician needs to practice full-fledged psychiatry. It does, however, require us not to be mere body technicians, but real doctors; human, humane, humanistic.

Ryle puts it this way:

“As a profession we are losing, in the process of developing our technologies, something of the philosophy, humanism and courage of the older physicians.

Our loss of philosophy is shown in our inability to piece together the components of an illness or an individual, to assess the roles of mind and body in morbid experience and to balance the needs of both –  in brief, in our inability to see things “whole”. Our loss of humanism appears in our too partial success in assessing the psychological needs of the individual and the social needs of the community. Our loss of courage is chiefly manifest in our present-day unwillingness to make pronouncements without subjecting our patients to elaborate investigations. These, while often necessary and valuable, can also prolong anxiety, and leave our own doubts and questions still unanswered.

Without courage to accept clinical responsibilities we cannot impart courage to our patients. Without a reasoned clarity in diagnosis and a reasoned hopefulness in prognosis we cannot properly counter fear. In the majority of cases it is possible to give to patients a simple interpretation of symptoms; a simple idea as to how they should be regarded; a set of sound reasons should further inquiry become necessary; a provisional prognosis, in which the emphasis should be on the better chance whenever possible; and an intelligent plan of action. For the busy practitioner or hospital surgeon or physician, it may well be impossible to devote time and thought to the more profound psychiatric methods, but there should always be time to examine carefully, to explain clearly, and to reassure as fully as the circumstances allow.”

I think it is easy for us doctors of today to lose our courage with all the scrutiny and second-guessing we are subjected to. I also think it has become more difficult to find the time to “examine thoroughly” and “explain simply”, as Dr Ryle puts it, and to take a good history. But without those ingredients our reassurance carries no weight. Without them the health care squirrel wheel keeps turning faster and faster at ever greater cost as insecure and worried patients churn around and around.

Ryle’s call to protect our patients from “unnecessary medical or surgical interventions” is, of course, another way of saying “first, do no harm”. In our continuing efforts to never leave any stones unturned, tests undone or cautions undelivered, we are probably causing more harm, at least in the form of fear and anxiety, than we would ever like to admit.

Morbus Propedeuticus

It was spring. My medical school class, two years along in our five-and-a-half year endeavor, had earned the “medicinae kandidat” degree. We were now worthy of leaving the basic sciences and research center on the outskirts of town and starting our preparatory clinical, “propedeutic” semester at the University Hospital. In Sweden, at that time, we used a lot of Latin words and phrases. Crohn’s disease was  Morbus Crohn, chart notes listed physical exam findings by Latin names for the bodily organs: Cor for the heart, Pulm(ones) for the lungs, Hepar for the liver, etc.

Uppsala Academic Hospital was an imposing campus, with several tall, white towers, housing the most modern wards, laboratories and operating theaters. We were relegated to a pink stucco building that housed the old tuberculosis clinic.

The physical exam course was taught by a couple of older pulmonologists. At first they struck many of us as relics from a bygone era, but as the course went on, our respect grew. These unassuming physicians could percuss a patient’s chest wall and describe in detail what the x-ray would look like, they made us feel the tip of the spleen by turning the patient on his right side, they measured jugular venous pulsations and pedal pulses.

Sometimes we had real patients with remarkably abnormal findings to examine, but we often were charged with examining each other for assessment of normal physical exam findings.

My partner for the Lymphatic System module was Sven Björk, a slow-talking kid from the very north of Sweden. He had jet black, completely straight hair and a broad face with eyes set wide apart. He was part Same, the native, reindeer-herding nomadic population from north of the Arctic Circle.

Sven was a bright young man. He had memorized the anatomy quicker than I had, well ahead of the exercise. Yet he seemed nervous. I soon found out why: he had noticed several enlarged submandibular and anterior cervical glands on himself. We compared each other’s necks and jaw lines, but found to our surprise that our lymph nodes were about the same size.

My glands had been big as long as I could remember; I had gone through repeated strep infections. In second grade I missed 42 days in just one semester. Sven had never had strep throat, and he didn’t remember feeling any enlarged lymph nodes before, but he had never checked himself quite like this before.

Our instructor came over to see how we were doing. Sven cleared his throat and started telling Doctor Bruun what both Sven and I had noticed on his neck.

The fifty-something doctor put his hands on Sven’s neck. Methodically, he worked his way up, down and around the neck and down into the armpits. He had Sven lie down on the exam table, supine for the liver, on his right side for the spleen, then reached for the lymph nodes in Sven’s groin. His face was serious as he whisked Sven off to his office, leaving me standing, feeling my own cervical lymph nodes, bigger than Sven’s.

Sven was diagnosed with Hodgkin’s Disease, a type of lymphoma that wasn’t quite as easily cured then as it is now, but Sven responded well to the treatment and didn’t miss much school.

The rest of our class, me included, went through a prolonged case of what our instructors called Morbus Propedeuticus, Medical Student’s Disease. It is natural to worry that you might have some of the bad diseases you learn about in medical school. Seeing one of your classmates develop cancer sets the stage for more than the normal amount of hypochondriasis.

I realized that even though Sven’s and my lymph nodes were similar, his had developed quickly without reasonable explanation and mine had been there for years and had their origin in my recurrent episodes of tonsillitis. I did ask my instructor to check me over, which he gracefully did. He was not worried, and I accepted his assessment. I never again worried about having a dreadful disease, but I often thought of Sven and me during that physical exam class; there but for the grace of God go I.

Around the time of my birthday a couple of weeks ago, I suddenly thought of Sven again: I know he was declared cured from his Hodgkin’s, but what about freak recurrences, late cancer treatment effects or other tricks of the Grim Reaper?

Google gave me the answer: Sven is head internal medicine physician at a medium sized hospital. He has published several scientific articles, and was interviewed recently about differences in heart attack survival between northern and southern Sweden. I even found a couple of pictures. Wouldn’t you know it, he doesn’t have a gray hair on his head or wrinkle in his face; he looks younger than I do.

Bless you, Sven. I wonder if you know how often my thoughts have gone back to those weeks we spent together way back then.

Avoiding Retirement

Marc Lachance is the perfect consultant. Ten years my senior, he had more than mastered his specialty by the time I came to the area. He had also established himself as a mentor to Cityside Hospital’s residents and many young physicians who sent him referrals or called him for curbside consultations.

Marc used to live in a rambling farmhouse not far from where I live. But then his elderly father, widowed and suffering from macular degeneration, needed more help in order to stay in his own home. Marc moved to the opposite side of the city to be closer to his father. Marc’s wife was able to look after her father-in-law while Marc commuted to his office downtown. When his father passed away, Marc and Elaine stayed put, even though Marc’s commute was long.

Marc would follow some patients through the decades, but more often he would do a consultation and perhaps a follow-up. Then he would dictate a letter, right in front of the patient, to the referring physician with a detailed care plan. Marc welcomed follow-up calls from his colleagues and he insisted on getting continued updates on patients he had seen in consultation.

Unlike many specialists, he prided himself in his broad knowledge of medicine. I often ran into patients who had seen Marc for a consultation pertaining to his specialty, but had been diagnosed with cancer, hepatitis C and other conditions by Marc.

Whenever I called Marc for curbside advice, he told me exactly what I needed to know in order to move forward with my case. He never put me down if my call was disorganized and less than well prepared. But his own clarity of reasoning and exquisite mind for detail always made me feel I had been to school or a motivational seminar: “This is how a physician should be”, was the thought that lingered after getting off the phone with Marc.

Marc’s partner, whom I had fewer dealings with, retired a year ago. Many of us primary care physicians quietly wondered what was going to happen now.

Yesterday, a patient I shared with Marc brought in a letter she had just received. It was a printed letter that read:

“Dear Patient,

After more than 35 years, I will be closing my practice on December 30, 2013. For many years I have commuted a great distance to my office. As I am soon turning 70, and hoping to avoid retirement, I have made the decision to relocate my practice to Meadowview Hospital in Cornish, which is closer to my home. I will be an employee of Meadowview Hospital without the concerns of managing the business of a medical practice. By making this move, I am hoping to be able to practice medicine well into my eighties if I continue to enjoy the good health I have been blessed with.

I would be happy to continue seeing any patients who wish to transfer to my new location, but understand if most of you will want to find a specialist closer to where you are. Drs Jonathan Bard, Sheldon Mintz and Ravinder Pran all accept new patients in their Cityside Hospital Clinic.

I appreciate the confidence you have placed in me and wish you the best future health. Your primary care doctor has always received copies of my notes and your complete medical records are available for transfer by contacting my office at the above telephone number….”

I slowly handed the letter back to my patient.

Marc, I thought, you are teaching me something every time: How to be an up and coming young doctor, how to conduct yourself when you are in the prime of your career, and how to stay in the most fascinating job in the world as long as you possibly can. I know you love medicine, possibly even more than I do. I also know that you are at least ten years wiser than I am about being a human being, a son, husband and citizen of the world.

Bonne chance, mon ami, and may you never retire.

The Night Before Surgery

On a hot afternoon in July Harold “Junior” Bray walked around his small farmhouse one last time before it was time to leave for the hospital. Everything was in order – the coffee maker was unplugged, the windows secure and the message on his brand new answering machine informed callers that he would return their call as soon as his health permitted.

Every step was deliberate, slow and painful. Whenever he could, he leaned on something close by to redistribute his weight away from his arthritic left hip.

Harold Bray Jr’s place was neat as a pin. Widowed for fifteen years, he ran his one-person household just the way he had run his little store. Everything was always well organized, clean and fresh. Even now, he rotated the dry goods in the kitchen cupboards, so that nothing ever went out of date.

At precisely one fifteen he locked his front door and hobbled across the gravel front yard to the car. As he turned the ignition, the gas gauge rose to FULL and the small motor started obediently. He drove exactly the speed limit all the way to Cityside Hospital and arrived promptly at three o’clock.

The woman at Central Registration had his paperwork, a plastic card with his personalized information embossed and a bracelet with his name, birthdate and his orthopedic surgeon’s name.

Up on the orthopedic floor, a nurse and a young doctor, an intern, assigned to Dr Oberlin’s service, greeted him. He answered questions, signed some papers and underwent a detailed and lengthy physical exam by the young doctor, who was obviously very nervous, but Harold could tell how sincere and enthusiastic he was about being an intern.

After dinner, which was actually better than he had expected after hearing his neighbors’ and friends’ accounts of their hospital stays, Dr. Oberlin stopped by. He wore a wrinkled summer blazer and a white button-down shirt with a loud, wide paisley tie. He spoke confidently about how routine this operation would be and wished Harold a good night.

“See you in pre-op at seven tomorrow”, he waved on his way out of Harold’s room.

Harold watched some TV until a night nurse came in and announced it was time to start preparing him for tomorrow’s surgery. A Nurse’s Aide arrived and he was id-checked and sent to the bathroom with special soap to shower. After he had dried off, the nurse came in with a sleeping pill. He wasn’t sure he needed one, but accepted it to be sure he had a good night’s sleep. By nine o’clock he was sleeping peacefully and when an orderly rolled his gurney into pre-op at six forty-five, he really didn’t feel nervous. He figured he was ready, and he had waited long enough for his new hip.

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On a hot afternoon in July, Harry Bray paced the floors of his run-down little farmhouse. Opening cupboards, closets, desk and kitchen drawers, he searched for the letter with pre-op instructions Dr. Gleeson’s office had sent him. What time was he supposed to stop eating? When was it he was supposed to shower with that special soap? When did he need to be at Cityside to check in in the morning? Was it really five thirty?

He finally found the instructions and threw himself, as much as his a sixty-eight year old arthritis-ridden body allowed any sudden movements, down in his blue velour recliner. He had managed to swing by the refrigerator and now he popped open a cold beer – after all, the sun was over the yardarm, and he definitely needed something to steady his nerves.

Harold Bray, III’s house was the same one his father had spent most of his life in, the one he had died in at the ripe old age of 88. Harry inherited it, just like he inherited his father’s crippling arthritis. He looked around from where he sat – the place was a mess, even he admitted it: Overfilled ashtrays everywhere, piles of magazines, clothing strewn about, and now drawers left open from his panic-stricken search a few minutes ago.

He lived alone, always had, and he seldom left the house. He was nervous about driving through the woods to town all by himself at four in the morning, the worst time for wildlife.

The afternoon passed slowly. He had a couple more beers, tried to watch TV, tried to get his cousin Ned on the phone and actually managed to take a short nap after his three o’clock pain pills kicked in. At five thirty he opened a can of beef stew and ate it cold – it was too hot to bother warming it up.

After he ate, he watched some TV, ate a bag of chips and finished off the beer in the refrigerator.

All night he tossed and turned, catching fifteen minutes of fretful sleep here and there. He dreamt about hospitals, about something going wrong with the anesthesia or surgery, about hitting a moose driving through the woods at four in the morning.

At three o’clock he gave up. He got dressed and almost drank a cup of coffee before catching himself – he wasn’t supposed to eat or drink anything before the surgery.

Route One was dark. One of his headlights was dimmer than the other; the plastic lens was all scratched and fogged up. His eyes kept fogging over, too as he tried to watch the edge of the woods and the yellow centerline at the same time.

Suddenly, rounding a curve, there he was – the big bull moose from his nightmare. Harry slammed the brakes and swerved to the right. The moose froze and the car slid in slow motion toward the steep ditch. Suddenly the moose turned to the left and ran. Harry turned the wheel sharply to the left. The old pickup truck groaned and bounced back in position in the road again but with an unmistakable grinding in the right front end; he was driving on the wheel rim.

At exactly five thirty Harry hobbled through the hospital pneumatic doors, drenched in sweat, dirty to his elbows and with black rubber stains even on his forehead.

He cleared his throat as the receptionist raised her eyebrows and looked him over:

“I’m Harold Bray, III and I’m here to have my hip operated.”


I just realized none of the posts show on an iPad or a computer, but they do show on an iPhone. WordPress is working on this. In the meantime, please visit my Substack.

 

 

Osler said “Listen to your patient, he is telling you the diagnosis”. Duvefelt says “Listen to your patient, he is telling you what kind of doctor he needs you to be”.

 

BOOKS BY HANS DUVEFELT, MD

CONDITIONS, Chapter 1: An Old, New Diagnosis

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