Archive Page 154

Cave! Ultracrepidarianism

“Sutor, ne ultra crepidam judicaret.”
(Shoemaker, not above the sandal judge – “stick to your last”.)

“Doctor, what do you think of alternative medicine”, a patient with Chronic Fatigue Syndrome asked me the other day. She was interested in doing something more for her severe fatigue. “Would acupuncture help me?”

I paused and, as I have done many times before, answered that my training and most of my clinical experience has been in Western, allopathic medicine. (Ironically, the word “allopathic” was first used as a derogatory term by the classically trained physician Samuel Hahnemann, who founded homeopathy after becoming disillusioned by medicine as it was practiced in his era.)

I don’t believe we allopaths have all the answers, and I have a personal interest and fascination with many other forms of healing, but I have set a standard for myself to only promote and recommend treatments that are consistent with my training, because I don’t have anywhere near the same expertise in the other forms of healing. Even within allopathic medicine I try to be really clear about what we know and what makes sense but still remains to be proven. For example, some cholesterol and blood pressure medications have been shown to decrease heart attack rates while others have not, so I make this distinction very clear to my patients.

I support every patient’s quest for health and health care that fits their belief system and temperament, and I can sometimes be a resource in understanding some of the claims made by practitioners of “alternative medicine”. But I don’t point patients in that direction unsolicited. In that sense, I very much live by the words of Hippocrates of Kos, the father of medicine, who set strict limits for physicians’ scope of practice. In the Hippocratic Oath he wrote:

“I will not cut for stone, even for patients in whom the disease is manifest; I will leave this operation to be performed by practitioners, specialists in this art.”

The cobbler analogy in the old adage “Shoemaker, stick by your last” has an interesting history and is of roughly the same vintage as the Hippocratic Oath:

The painter Apelles, also of Kos, who also lived in the 4th century B.C., liked to stand back and watch spectators’ reactions to his paintings. One day a shoemaker commented on the way Apelles had painted a sandal incorrectly. Hearing this, the famous painter introduced himself and thanked the shoemaker for pointing out his mistake. Emboldened by this, the shoemaker offered further suggestions for “improving” Apelles’ work. Legend has it that the artist, angry and annoyed, cut the shoemaker off with the words “Shoemaker, don’t judge above the sandal”, or “Sutor, ne ultra crepidam judicaret.”

This quote has given rise to the word ultracrepidarianism, which is something rampant in medicine and in today’s Western societies. Doctors often feel tempted to opine in matters beyond their formal training and experience, both in their exam rooms and in national media.

I have colleagues who prescribe red rice yeast, a “natural” statin instead of Lipitor or Crestor, and almost every doctor I know screens patients for vitamin D deficiency, which is a chemical abnormality that is still in search of clinical significance beyond that seen in osteoporosis. The hypotheses for this potential elixir of youth are tempting, but still not rigorously proven. For now, I cannot in good conscience recommend vitamin D with the same emphasis as blood pressure or diabetes control.

There should be only one standard in medicine when it comes to actively recommending treatments for our patients. But doctors are often tempted to stray from good, solid science because of personal hunches, a desire to be cutting edge, or from the temptation of creating “profit centers” in medical offices, selling supplements or delivering nontraditional services for cash.

But this is where I see my job as supporting my patients’ own desire to find ways to health they can believe in. My wife once had a very spunky elderly patient, Gloria, who for forty years had taken a special B vitamin she ordered from the AARP. As the woman aged she always swore by this vitamin as one of the things that preserved her vitality.

One day during a housecall, Emma noticed that Gloria wasn’t her usual, witty and vivacious self. Going through the woman’s medication bottles, Emma noticed that the bottle of vitamins was empty. Gloria confessed she had been too tired to order another bottle, even though she knew how the vitamins always helped her. Emma encouraged Gloria to order some more, and at the next housecall, Gloria was her old self again

There is a world of difference between physicians promoting unproven, “alternative” treatments and being intrigued by or simply supportive of our patients’ pursuit of them. And, strictly speaking, I feel even most vitamins fall into the latter category, short of taking in enough vitamin C to prevent scurvy.

P.S. Cave is a fairly universally (except in the USA) known word for caution, including but not limited to drug allergies. For example, pseudocholinesterase deficient patients, who cannot metabolize the muscle relaxant succinylcholine, may have the warning “Cave! Succinylcholine” in their charts.

“Cave! Ultracrepidarianism” is a warning to all health care professionals.

There may be future postings about medical pitfalls under the new category “Cave!”

Doctors Speaking Accountanese

You have to think fast in medicine. Not that most doctors handle life and death emergencies all day long, but even seemingly mundane clinical situations require a lot of rapid gathering of data, processing of applicable information and attention to detail in formulating a plan.

I have always been bemused by the so called E&M (evaluation and management) coding that dictates payment by requiring documentation of how doctors think. Ironically, the AMA defines this work and thereby has been a major contributor to physicians now spending more time on documentation than on doctoring. The documentation, even with EMR templates, takes infinitely more time to complete than the thought processes that go into clinical work. Even our preliminary observation of a patient, before any history taking occurs, is something instant, that in a novel might fill a whole first chapter, or in a homeowners’ insurance inventory might go on for pages. We can take in details of a new face or a new place in the blink of an eye; this is something all of us experience. Doctors, by nature of their profession, hone this ability in Sherlock Holmes-like fashion.

Not that I follow sports, but I can imagine a pro golfer or star soccer player could go on for quite a long time describing all the millisecond judgments that go into every aspect of their game. But the difference is they don’t have to. It seems they get paid according to their results, and not by their stated mental work behind those results. In fact, most fans’ appetite for hearing all the details behind the action shots is probably rather limited.

In medicine today, unlike the worlds of Sir Arthur Conan Doyle or Sherlock Holmes, we don’t quite have the option of using the richness and nuances of our language to document our observations. Our words must be chosen from a dictionary of “findings” that correspond to numerical codes used as underpinnings of our EMRs. Our patients can’t be “uncomfortable”, “squirming”, “braced”, “forced”, “pensive” or even “vague”; we must choose between “in acute distress” or “not in acute distress”.

Our language is no longer ours; we must speak like accountants. But when we do, will accountants understand us any better than when we speak like doctors? I suspect that by speaking their language, we risk having our powers of observation, ability of analysis and skill of formulating a clinical plan reduced to something with less depth than what it is, regardless of the number of details we provide.

When we encounter patients we have seen a long time ago, our own notes can fail to give us the instant familiarity of past medical records, and when we see our colleagues’ patients, we struggle more to get to the essence of the clinical notes.

By accepting to describe our work in this foreign language, Accountanese, we have deprived ourselves of some of the tools of our trade, the shorthand that soccer teams might use to synchronize their game. We have lost the nuances of language we need to describe complex processes and multidimensional clinical scenarios involving patients of flesh and blood. So we fumble around, choosing more and more words from our pick lists, none of them quite the right one, while our notes get continually bigger and less and less precise.

We are more or less trusted to care for the lives of our patients, but we are not trusted to bill honestly for whether we just did an easy visit or a complex one.

Maybe I should ask my tax accountant for an itemized bill for his preparation of my income tax filing; all he sent me was a note, stating:

“Preparation of 2013 form 1040. $180″

I would never get away with anything that brief.

Angry Docs

“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; you are the one getting burned.”
Buddha

“I came to realize that if people could make me angry they could control me. Why should I give someone else such power over my life?”
Ben Carson, M.D.

“Depression is rage spread thin.”
Santayana

“Depression is the inability to construct a future.”
Rollo May

The other night I got an email with a survey from the AMA. I don’t recall ever getting one from them before. Not that I have been all that involved with the politics of healthcare; I joined the AMA when I was a senior resident, a newcomer to American medicine, and bought life and disability insurance through them.

In all the years of change and upheaval in American medicine, I have never been asked my opinion on what I need in order to do my job well or how I feel about my chosen profession. Until now, that is. And now, they skipped over any questions they might have had about what I need; they went straight to the more ultimate questions:

The AMA wanted to know if I’m burned out or depressed and if I hate my EMR. They also wanted to know if I am contemplating changing practice location, dropping out of medicine, retiring or committing suicide.

And I had somehow gotten the impression that the AMA was one of the drivers of change for the last thirty years. But maybe I was misinformed.

Clearly, the questionnaire indicates that the medical establishment is quite worried about its constituency.

In “Bitter Medicine” I wrote about how outside forces have distorted the traditional doctor-patient relationship. I also wrote about how doctors need to see their patients as suffering kinfolk and doctoring as having a higher purpose.

The four years that have passed since that piece have been years of increasing physician dehumanization through “Meaningful Use” and other bureaucratic mandates. I have seen more signs of anger and bitterness in doctors and there has been a great deal written about physician depression and suicide.

But what is this anger really, what is the nature of this depression, what are their consequences, and is there a way out?

In psychodynamic theory, Abraham postulated in 1911 that depression can be self-directed anger in people with narcissistic vulnerability. Freud linked depression to anger at oneself after a perceived or actual loss of a person one felt ambivalent toward.

Brenner, while I was in medical school, saw depression as resulting from symbolic castration or more or less actual disempowerment. Aggression towards the person who causes the feelings becomes self-directed instead out of fear of the other person.

Physicians, or rather, people who choose to become physicians, often think of themselves as more dedicated and perhaps even smarter than other people. We carry the world on our shoulders and sometimes feel we are different from other people. These are essentially what psychologists describe as narcissistic personality traits. I believe many of us are vulnerable to and apt to react with strong emotions to real or perceived rejection or loss of power, such as what has happened in our profession in the last 30 years.

The reality of today’s patient encounter is that some of the preciously short time we have allotted is spent fulfilling the requirements of the healthcare system that may or may not directly benefit each patient. That leaves little time for diagnosis and treatment, and even less for relief of suffering. And, of course, if we are trapped in our own suffering, we cannot help relieve that of our patient.

Physician anger and depression may, ironically, be as great an obstacle to good patient care as the Government mandates, insurance company obstacles and Health Information Technology shortcomings we doctors are so upset with.

Venting our frustration with the system is a waste of our patients’ appointment time. At most, we may need to briefly explain what can and cannot be done in the minutes we have together. And harboring feelings of depression or helplessness distracts us from the necessary engagement with each patient.

There may be ways for physicians to effect change of the system, but the place for that is not the exam room. There is also the possibility of opting out of the system. But for all of us who choose to stay, every patient encounter with a fellow human being deserves our full attention and genuine compassion.

Thinkers from all different religions and schools of thought have all said the same thing: We have a choice whether to cultivate our anger or not. Most tell us we can’t suppress it, because it has a way of expressing itself in other ways, even as illness.

Physician anger or depression that stems from powerlessness, like all anger, has an antidote. Borrowing from Buddhist thought, the antidote is love and the path is mindfulness.

Thich Nhat Hanh writes:

“When we embrace anger and take good care of
our anger, we obtain relief. We can look deeply into
it and gain many insights. One of the first insights
may be that the seed of anger in us has grown too
big, and is the main cause of our misery.”

“In a time of anger or despair, even if we feel
overwhelmed, our love is still there. Our capacity to
communicate, to forgive, to be compassionate is
still there. You have to believe this. We are more
than our anger, we are more than our suffering.
We must recognize that we do have within
us the capacity to love, to understand,
to be compassionate, always.”

He also says something that points out Westerners’, including Western doctors’, emphasis on formal education compared with cultivating our well-being. Hearing about divorce rates and alienation of other family relationships among physicians, these words should make us stop and think. Not that we should have forgone our education, but why do we think our life, well-being, and our relationships don’t also require effort and time?

“Getting a university degree may take you six or even eight years, and that is quite a long period of time. You may believe that this degree is important for your happiness. It might be, but perhaps there are other elements that are more important to your well-being, and to your happiness. You can work on improving the relationship between you and your father, your mother, or your partner. Do you have time for this? …You are willing to put aside six years for a diploma; do you have the wisdom to use just as much time to work out a relationship? To deal with your anger?”

Our anger demands attention, but not encouragement. Like Buddha’s hot coal, it hurts the one who carries it. When we are angry, like many of us are with the system, we need to examine our anger. Are we angry more or less because we can’t have our way? Are we angry because we think health care politics need to change? In the first case, our anger is only hurting us; in the second, it needs to be turned into political action.

We need to stop banging our heads against the wall. Yes, our tools aren’t as good as we would like, those who pay us don’t know enough about what we do, and the Government is fixated on form without function.

But did Hippocrates have top-notch equipment, did Albert Schweitzer have all the resources he needed, and did Michelangelo always have the right paints and brushes? Sure, we could all do better if only….but we’re just wasting our breath, using up valuable time and watering the seeds of anger and depression if we harbor such thoughts in the exam room or at home. We can take them to the political arena, but we must not let them poison our patient care, our home life or our souls.

Suddenly Expensive Generics

Fran Barker called today. She was in a panic because the cost of her monthly prescription of 150 mg amitriptyline tablets had gone up to $130 from $13 the month before.

Amitriptyline has been available in this country since 1961, and the 100 mg strength was on Walmart’s list of $4/month drugs the last time I looked at it a few months ago.

I called Fran’s pharmacy. Two of the 75 mg tablets would be less expensive, about $75 for a one month supply, but this would still be a hardship for Fran, who is disabled and lacks prescription coverage.

A few months ago I read that the older, generic statin drugs for cholesterol were suddenly not on Walmart’s $4 list due to sudden price increases by the manufacturers.

Something similar happened to insulin a few years ago – it went from a few dollars to $80 per vial without any explanation that I was aware of.

I have Googled around a few times to try to find out what is happening, or what people think is happening, but the dramatic price increases I have run into don’t seem to be getting much press.

It appears to me that the pharmaceutical companies have stopped their price competition, possibly by secretly dividing up the market and definitely by limiting supplies. If that is true, antitrust laws are likely being broken. Meanwhile, people with chronic illnesses are being squeezed financially even more than they already have been.

Generic drugs used to be a low margin product for manufacturers, but a major profit for drug stores. With newer generics, whose brand name competitors are still on the market, pharmacies may buy them for 10% of what they pay for the brand and sell them for 70% of the brand name price. Now, with their purchase prices going up on one generic after another, their markup is likely shrinking to the levels of brand name drugs. This will likely drive independent pharmacies out of business.

We already had a great deal of mystery and intrigue around pharmaceutical pricing and actual insurance payments for prescription drugs. Just like doctors and patients have trouble figuring out how much MRIs and artificial knee joints cost, the real cost of pharmaceuticals is often unobtainable. I can try to choose lower cost medications by looking up the average retail cost on Epocrates, but insurance companies and drug manufacturers often negotiate deals that make favored otherwise expensive drugs cost less than non-favored drugs with lower published prices.

This whole drug price situation is really the stuff of mobster movies. Or imagine a sitcom about what happens when gasoline (petrol) prices increase by 900% overnight. That wouldn’t be funny for very long. People would complain loudly about being held hostage or extorted.

But is anybody complaining about what is happening now with drug prices? Am I just not hearing about it because I gave up watching TV? Or am I an early voice in the wilderness? You tell me…

“I Also Tame Wild Horses”

Autumn’s 17 month old nephew from out of town had been visiting with us in the office the other day. He sat in his mother’s arms as Autumn showed her sister, April, around the clinic. We had made brief eye contact then. He had the hesitant look of quiet amazement as he looked around our busy office. I minimized the EMR on my big computer screen and showed him the picture of my white Arabian horse standing next to me, all bundled up in my thick leather jacket with a blaze orange vest over it. Dylan’s eyes locked on to the screen as the two women talked. They stayed locked on and he didn’t seem to register my attempts to make contact. After a few minutes, April signaled she had to be going. Autumn and I both waved and Dylan strained his neck, gaze still fixated on my computer screen as his mother turned around and stepped into the hallway.

Friday, Dylan was in my schedule for fever and vomiting. Both his mother and father were there and Autumn was in the room with them.

Dylan didn’t appear to be all that sick. I sat slouched on my stool while I took the history and then slowly moved closer to the exam table and began to examine Dylan in his aunt’s arms.

Autumn and April commented from the beginning on how difficult Dylan usually is to examine. I plodded along slowly without any protests. I checked his neck for enlarged lymph nodes and carefully pulled the stethoscope from the pocket of my long white lab coat.

“I don’t believe that he’s okay with you doing that”, his mother said as I listened to his heart and lungs. I squeezed his belly very gently as I told his mother that his lungs sounded nice and clear. His abdomen was absolutely soft and he didn’t seem bothered by my palpation.

Next, I slowly pulled my pocket otoscope from the holster on my belt. Dylan watched intently as I unfolded the instrument.

“See how this works”, I said in a low voice and turned the light on. I aimed it first at my left hand and wiggled the light a little. Dylan’s eyes followed my movements. When I aimed the light at the Disney figure on his shirt, he looked down, and his chin touched his chest. Slowly, I reached past the exam table and pulled an otoscope tip from the wall dispenser. “Let’s check your ears”, I said while I attached the otoscope tip.

Dylan’s eyes followed every move I made. I aimed the light at my own hand again, then I quietly reached over and looked in his ear while I very carefully pulled just a little at the tip of his outer ear. As he started to tighten his muscles I let go and pulled away. “That one looks okay”, I said as April and Autumn stood next to Dylan with wide eyes and open mouths.

His other ear looked fine, too. He didn’t tense up at all this time. I said “let’s check your mouth” and cocked my head up a little to be able to look through the lower portion of my bifocals. Dylan also looked up a bit, and his jaw muscles relaxed. Gently, I touched the sides of his mouth and opened mine a little. He opened his mouth in the same fashion and I pulled lightly on his jaw and his mouth fell wide open. I got a quick look at his tonsils and I could see that his mucous membranes were moist and normal in color.

“He looks fine. I think he just has a viral infection, so as long as he keeps taking in fluids and doesn’t develop any other symptoms, he should be okay”, I reassured his parents.

“He’s never let anyone examine him without fussing or crying”, April said. “I know”, Autumn chimed in. “He’s always been impossible to examine.” Turning directly to me, she continued: “I always knew you were good with kids, but this was truly amazing!”

“I also tame wild horses”, I said, overcome by an uncharacteristic impulse of flamboyance.

As I thought about my words, it seemed that the analogy is obvious. People talk of the “techniques” they use when dealing with mistrusting, unbroken rescue horses, sullen teenagers or toddlers with fear of doctors, but I never thought of any of it as technique. Approaching another creature requires genuine respect and connection, and it can’t be completely taught or analyzed.

After I ended up with my rescued Arabian princess and got to know her by just hanging out with her, sitting quietly in the barn cold winter evenings and sultry summer nights, she has come to trust me, and I her. When she was ill and too despondent to return from the frozen pasture during her first ice storm, I trundled out to her with halter and lead rope for the very first time, and she followed me willingly back to the barn.

Later, I have read about just this way of relating with horses, not by dominating them, but by earning their trust and respect. Carolyn Resnick calls it “The Waterhole Rituals”. The first and most crucial step is to place yourself near the horse without fixating on it, and enter a frame of mind that is peaceful and gentle. If you just do that, any horse will seek you out to make your acquaintance.

Approaching a sick child, or just a fearful one, requires the same frame of mind. There may be techniques to learn, like listening to the lungs right away, before any crying starts, and saving the throat exam for last, because if the child does start crying, you’ll see the throat anyway, and without effort. But those are superficial and secondary considerations. The kind, gentle and healing presence isn’t something you need schooling to learn. It is just a matter of having your heart in the right place. I also think it is important to connect on a level some people may refer to as “energy”; Dylan, the amazed visitor from another world, that of a gentle and curious seventeen month old, responds better to a quietly plodding softspoken “energy” or demeanor, while some older children with mischief in the back of their minds relax and connect better with a grandfatherly doctor with a twinkle in his eye and a joke up his sleeve.

As my practice has matured, I see fewer children than I used to, but I cherish the opportunities I do have to see young children. It’s like dusting off your old bicycle and going for a spin – you never forget how to do it.


I just realized none of the posts show on an iPad or a computer, but they do show on an iPhone. WordPress is working on this. In the meantime, please visit my Substack.

 

 

Osler said “Listen to your patient, he is telling you the diagnosis”. Duvefelt says “Listen to your patient, he is telling you what kind of doctor he needs you to be”.

 

BOOKS BY HANS DUVEFELT, MD

CONDITIONS, Chapter 1: An Old, New Diagnosis

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