Archive Page 131

A Moving Target

He was a new patient. His medical records described him as severely hearing impaired and suffering from a rare movement disorder. He arrived with a caseworker for his 11:30 first appointment and I was running late.

“Why is a new patient or a minor surgery procedure ever scheduled at the end of the morning instead of at the beginning”, I asked Autumn, rhetorically.

The man seemed to be bouncing around in the small exam room. His head bobbed randomly and his body moved like waves in a wading pool full of three-year olds.

I introduced myself. His caseworker, clipboard in her left hand, shook my right hand. The man floated toward me, cocked his head suddenly and hollered while pointing to his right ear:

“I can’t hear!”

“For how long?” I asked.

He didn’t seem to hear me.

“At least a few years from what I know”, his caseworker answered, drowned out by the man’s repetition, “I can’t hear, I can’t hear!”

He seemed irritable, frustrated, and there was an air of desperation in the room. The caseworker looked helpless.

It was 12:35.

“Let me check your ears”, I said, gesturing with the wall mounted otoscope.

“I can’t hear!” the man shouted.

As I leaned toward him I could smell the odor of ear wax. I tried to gently grab and pull his right ear upward and back while I held the otoscope head between my right thumb and index finger and leaned the pinky-side of my hand against his cheek.

His head moved back and forth, up and down. Pushing my right hand firmly into his cheek, I moved with him, as if we were both bouncing on an underinflated air mattress.

All I saw was ear wax.

I repeated the procedure with his left ear. It, too was impacted with black, smelly cerumen.

“Let me flush your ears”, I said, loudly, into his right ear.

“I can’t hear!” he hollered back.

“I’ll be back”, I said and gestured with my index finger straight up as in “one minute”.

So followed an awkward dance with the man sitting in the exam room chair by the sink, Chux pad on his shoulder, the caseworker holding the cup under his ear and me flushing his right ear with lukewarm water from a large plastic syringe. All three of us moved in near-unison, again and again in what looked like multiple attempts to master a Tango step, sometimes rising at the end, sometimes sinking down or pausing mid-movement, all three of us.

The ear wax poured into the cup and large amounts of water saturated the Chux pad and the side of the man’s neck. Some of it landed on me.

As I eased myself away each time from our virtual embrace to empty the cup of clumpy wax soup into the sink, I watched through my splattered glasses for a reaction.

After the fifth or sixth serving, the man’s movements stopped suddenly. He shook his head like a wet dog. Slowly, he cocked his head and I could sense how he was trying to listen.

The aura in the room changed. Everything seemed quiet and peaceful. He was perfectly still for what seemed like half a minute. The caseworker picked up her clipboard and clicked her ballpoint pen. The ceiling air vents blew their gentle, artificial breeze. Someone walked down the hall outside the exam room.

“I can hear again. Thank you”, he said in a normal voice.

“Fantastic. Are you ready for the other ear?” I gestured with the otoscope. It was 12:49.

His head started to gently move again.

“Let’s roll!” he grinned.

Quality Medicine: Showing the Math

Medicine is a lot like grade school mathematics. The days are long gone when instantly knowing or quickly arriving at the right answer was enough. Now it’s all about showing your calculations. Process is everything. It’s almost like having the right answer doesn’t matter anymore.

If you ask a patient with a given symptom, like tremor, lameness or a skin eruption, only a few questions and then conclude that they have a rare disease you happen to have seen before during your years of training and experience or read about in your diligent study of the leading medical journals, you get paid next to nothing. If, on the other hand, you ask a hundred questions and examine them from head to toe and then decide to refer them on to someone who knows more than you do, you can charge a bigger fee, at least a 99214 instead of a 99213.

We get reimbursed for complexity that is sometimes a result of incompetence. That is one definition of value in health care delivery.

These days, quality in healthcare is also measured in “outcomes”; how many people comply with our recommendations by eating better, quitting smoking or exercising more. Or at least whether we documented that we told them to.

Of course, you could talk about more things in greater depth in your precious fifteen minutes together if you didn’t also have to document everything you touched on in a Byzantine electronic record better suited for billing than patient care. But, if you didn’t document it, it didn’t happen.

Diagnostic accuracy doesn’t figure prominently in the quality literature, only sometimes when it comes to missing heart attacks and cancer, but in my world, primary care, you can still achieve great quality scores from documenting sometimes meaningless housekeeping tasks like annual microalbumen tests for diabetics, even if you don’t manage to decrease the kidney damage.

Good quality measures are ones that are easy to collect and manipulate statistically. But does a good and tidy measure convey better quality?

We are still stuck in the Deming manufacturing mindset. But people are not machines and diseases are not manufacturing processes.

Do we ask how a teacher managed to inspire a young student to become a great scientist? Do we demand an explanation of how a priest brought a distraught parishioner from the brink of suicidal despair? Do we ask how Da Vinci held his paint brush when he painted Mona Lisa’s smile? Do we value an athlete with “good” technique more than one with good scores?

I think our health care quality debate has a myopic view. We are often ignoring the big picture and the real purpose of caring for the sick. That’s because healthcare is a business now…

Acts of Kindness

As I look back over the past work week I can’t immediately recall any great diagnostic coups or clinical victories. I vaguely remember having to reboot my EMR a lot because it seemed to freeze up, and I certainly remember being locked out of its iPad app for a day and a half.

What I remember best are my trips back to the waiting room pushing wheelchairs with elderly patients at the end of their visit, and I remember the gratitude of the arthritic man, no older than myself, whose toenails I cut as a “by-the-way” after I had excised a suspicious mole on his back.

Again this week I found myself, privately quiet and not much fun, living out my other persona, the secure, reassuring, jovial, gray-templed physician, fatherly to some, a peer to others, and a kind man of the (white) cloth to some.

Sure, it’s great to nail a difficult diagnosis, but we can’t expect to do that every day. What we can and should do every day is connect with and touch every human being we run across in our role as physicians. Otherwise, the new housekeeping tasks of healthcare today will wear us down.

That thought reminds me of a post I wrote nine years ago, six months after I started writing his blog, “A Day Without a Diagnosis”:

“Thursday I saw 29 patients*, but I didn’t make a single diagnosis. I did three physicals and saw several patients with diabetes, hypertension and high cholesterol. A migraineur came in for a shot, and we double booked a few sick people who already knew their diagnosis and what treatment they needed.

One of my physicals was a Registered Nurse, about my age, who left clinical nursing a few years ago and now does research for a group of surgeons at the hospital up the road. Her research focuses on quality of care.

That got me thinking about the differences in health care between my early days in this profession and today. The spectrum of diseases we deal with has changed, and lately also the notion of what constitutes quality in health care.

Physicians today spend more time managing chronic diseases, some of which weren’t even thought of as diseases twenty-five years ago. A cholesterol level we feel obligated to treat today was considered normal back then; Type 2 Diabetes was something our grandmothers developed in their late seventies, not a multisystem disease we looked for in children and young adults; Attention Deficit Disorder wasn’t something primary care physicians concerned themselves with. And who would ever have thought that Fibromyalgia, a term coined in 1976, would be such a common disease, along with Restless Leg Syndrome (Ekbom, 1944), obesity and toenail fungus?

My conversation with my R.N. patient moved toward the issue of what really constitutes quality in medicine. I worry that some things are measured mostly because they are easy to measure: What percentage of heart attack victims is currently taking beta-blockers? What is the average Hemoglobin A1c among a physician’s diabetic patients (as opposed to how is this value trending over time)? I never hear statistics on how often we as doctors make the right or wrong diagnosis, or how difficult it was to move a particular patient from one set of numbers to another.

The practice of medicine has become more a matter of housekeeping, if not downright bookkeeping. The days of brilliant medical mavericks that could ferret out the correct diagnosis and quickly move on to the next heroic act are history; today’s focus is on long-term management according to evidence-based guidelines (“evidence-based”, now there’s another topic for a post…).

There is no point in lamenting the shift over time in what our patients need from us; I am merely reflecting on what has happened during my years in practice. If we as doctors want to see more bad, untreated and undiagnosed diseases, we need to move to more remote places – my underserved corner of Rural America isn’t the place for that anymore.

Managing chronic illnesses can be very meaningful and satisfying, but it isn’t quite what I imagined I would be doing to this extent. But it is one of the reasons we need to hone our skills as physicians; it is no longer enough to be a good diagnostician when almost every patient we see in a given day already has a diagnosis established. Our challenge is to help them manage that diagnosis. That means we need to practice motivational interviewing for our patients with lifestyle-inflicted diseases, serve as our patients’ medical home in a fragmented health care system and be a voice of reason in an era of information overload.

In a brief moment of worry about what I would do if I didn’t get accepted to medical school I had considered teaching, and I worked as a substitute teacher for one semester between my military service and medical school. I don’t think that was a waste of time at all.

Once in a while as a physician, you’ll make a diagnosis. Most of the time you help patients manage a disease they already know they have.”

That, and dispensing a little kindness in the course of each day.

(*That was before EMR, Meaningful Use, PCMH, ACA and all that. Today, between the technology and all the mandated components of every office visit, I rarely see even 25 patients per day.)

A Pearl From Medical School

In Sweden, back when I trained, three blood tests were the “routine labs” done at most doctor visits: Hemoglobin, White Bloood Cell Count and Erythrocyte Sedimentation Rate. I’m trying to remember, but I don’t think everyone waited an hour to see the doctor, so they must have used a modified rapid sedimentation rate.

The “Sed Rate”, or “sänkan” as we call it, was invented by Robin Fåhraeus, a relative of one of my High School teachers. Fåhraeus described the phenomenon in his doctoral dissertation in 1921 and was professor of anatomy and pathology at Uppsala University around the time I was born. He was nominated for the Nobel prize several times but was never awarded it. He collaborated with another Swede, Alf Westergren, on perfecting the technology. Blood in a vertical tube will separate into liquid on top and clumped together red blood cells on the bottom. The height of the fluid pillar after one hour is the “sedimentation rate”.

Anyway, in Sweden we were often faced with what to do when the sedimentation rate was abnormally high. In addition to the usual causes like infection, autoimmune disorders and multiple myeloma, it was drilled into my head to look for kidney cancer.

I’ve never heard any of my American colleagues talk about that, although there are several articles about the connection if you Google it.

A few weeks ago I saw a man who wasn’t feeling well. I ordered some lab tests, including a sed rate. It came back at 100 mm, five times the normal limit. I ordered a CT of his abdomen to look for kidney cancer. Before he ever got the test, he ended up in the emergency room with pneumonia. That could have explained the abnormal lab result. Because of the severity of his pneumonia, the hospital did a chest CT on him, so when he got the call about his appointment for the abdominal CT I had ordered, he told them he didn’t need it because he already had one. He thought one CT covered everything.

At his followup appointment, he was back to feeling nonspecifically unwell and his sed rate was now 118. I asked him to please reschedule his abdominal CT.

Today I got the result, a “Code Yellow, Unexpected Finding” fax in my office chair.

He has a one inch tumor in his right kidney, highly suspicious for cancer.

The Real Reason Behind EPCS?

As of July 1, pharmacies in Maine cannot honor paper or telephone prescriptions for controlled substances, from OxyContin down to Valium, Lyrica and Tylenol with Codeine.

EPCS, or electronic prescribing of controlled substances, is a double security step in the prescription process built into EMRs, electronic medical records. It involves another password entry and the use of onetime passwords from a small number generator issued to each prescriber.

It has been said that this will prevent fraudulent prescriptions via phone or on stolen prescription pads, as well as altering of legitimate prescriptions.

But there is another reason that doesn’t get much mention:

EPCS is going to prevent doctors from prescribing controlled substances for friends and relatives outside their regular office activity.

Now and then a physician is disciplined by the Board of Licensure in Medicine for writing pain medication prescriptions for friends, sometimes even getting pills back for their own use.

Not long ago a well respected older doctor gave up his license during a Board investigation of his career-long habit of prescribing a low dose tranquilizer for his wife. That was probably not an unusual thing to do for small town doctors in solo practice with no colleagues for miles around. It is not tolerated in today’s regulatory environment, where doctors are viewed as having no more integrity and judgment than anyone else.

The next step is probably what they did in Sweden many years ago: Pharmacies there were unable to submit prescription charges to the health insurer if scripts were not written on special forms, linked to each doctor’s place of employment. But in this case in tomorrow’s USA, the requirement will be electronic prescriptions linked to our EMRs.

That reminds me, I was too busy yesterday to answer a text message from Autumn, my nurse. She’s on vacation and came down with a bad cough. Should I prescribe her an antibiotic over the phone? She isn’t actually a patient in our office…


I just realized none of the posts show on an iPad or a computer, but they do show on an iPhone. WordPress is working on this. In the meantime, please visit my Substack.

 

 

Osler said “Listen to your patient, he is telling you the diagnosis”. Duvefelt says “Listen to your patient, he is telling you what kind of doctor he needs you to be”.

 

BOOKS BY HANS DUVEFELT, MD

CONDITIONS, Chapter 1: An Old, New Diagnosis

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